Epimax.. concerns

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I was googling Epimax and came across something about Epimax related ocular surface toxicity.. maybe I should have a word with the radiotherapy team when I go in for my Peg or chemo meeting.. has anyone used Epimax for radiation?

  • Epimax has quite a few side effects in addition to your obscure observation. Always run everything past your team. 
    I used Cetraben to moisturise and aloe vera gel straight after RT

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • hmm, I think I'll enquire about using Aveeno Dermexa instead.. 

    Loz (63)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Your team should give you something. I was given Diprobase but found it a little too greasy b

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi I was given sobrederm and told ro check annythjng  else via team I used aveeno after treatment. Remember do not out anythjng on before treatment. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • I'll mention to my CNS that I'm not happy with the Epimax, and see what else is recommended.. although I've noticed R1/R2 is back from Radiaderm, and looking at previous threads it used to be quite popular.. I shall email them and get a list of ingredients.. I don't think it will be on prescription, but it maybe worth the investment.. 

    Loz (63)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..