Hi everyone, I’m 16 weeks since last ChemoRadio. I’ve lost 30kg in weight since treatment started. I’m currently using EnsurePlus supplements, I eat soup mostly, but really struggle to eat much else. I do try but I always pay for it. I have absolutely zero appetite, when I do eat I can’t eat much, my throat seems to swell up regardless of what I put in there. My consultant last told me I shouldn’t be losing any more weight. But I physically can’t do anymore. I need to up my supplements but they constipate me dreadfully, the dietician says eat cream, fat, fat and more fat but I’m a little lactose sensitive so that causes issues, also don’t eat meat!
for the past 2-3 weeks my bones and muscles are really causing me discomfort. Particularly in my thighs, hips, neck and shoulders and this week my hands and wrists . It wakes me at night. Feels like rheumatism in my legs I used to get as a child.
im wondering if I’m lacking Vitamin D or the like. I haven’t mentioned it to my consultant and the team “ food police”
have any of you encountered this issue? Its so tiresome.
thankyou
Nicky
Good evening Nicky, it makes me sad reading this post because you should not be going through this with this discomfort, you must go back to your consultant and ask for a PEG or NG feeding tube so a dietician can recommend a more gut-friendly food supplement. Having a feeding tube will eliminate the need to swallow giving your swallowing a rest. The food supplements will contain most vitamins you need, i have been PEG-reliant for 10 years and my weight has remained stable but i take a laxative most days rather than suffer the dreaded constipation. There are so many different food supplements that are designed for people with issues/ tolerances with their diets, you will find yourself back in hospital if something is not sorted although I'm sure your dietitian/consultant will get you back on track. Wishing you all the best, take care.
Chris x
Its sometimes not easy but its worth it !
