oncologist tomorrow. question time..

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Hi, seeing that I had a splenectomy when I was 5yrs old, my main questions will revolve around the lowered immune system issue.. So, looking back, what are some of the questions that you should've asked when you met your team? PEG, after effects, etc..  thanks.

  • Hi first thing when you’ve got list of questions type or write out in duplicate one for you for oncologist it helps both of you. That way you so t miss anythjng. 
    You should get a dental refferal as our teeth need checking. 
    Ask if hospital  Policy is peg rig ir ng tube if needed. 
    will you be hsvjng chrmo then explain re spleen.

    Are you HPV positive? 

    How many radiotherapy sessions  

    A phone number of cns or Macmillian nurse  

    Will yiu see a dietician regularly.

    Am sure others will pop on  

    good luck Hazel  

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • yes, teeth good.. scale n polish

    will insist on PEG

    HPV+

    have CNS numbers

    already been informed treatment will be chemoradiation.. so will check up on it .. I think it was 7 weeks + chemo once/week

    cheers.

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • I’ll add to Hazel’s fairly comprehensive list 

    Regarding your list, they might say that all this is done at consent 

    When your oncologist goes through the consent form they will go through the treatment you are signing. This will include what the treatment will be and all the side effects ( nobody ever gets all of them ). It’s a legal requirement. I had plenty of time to raise questions at every tick  

    Make sure you understand what every one means. 
    To Address your particular concern just make sure your oncologist has the fact of your splenectomy at the front of their mind. I would be surprised if they didn’t though. It’s the chemotherapy that might pose a problem. The figures my oncologist quoted is that chemo adds just over 6% to your chance of cure. I would take time to discuss the consequences of not having any/ some/ all and the process in place should you run into trouble. 
    Best of luck. 
    Let us know how you get on 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Oh and if they say you will feel better two weeks after treatment end ask them why they say that if it’s not true

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Dani , thank you for making me smile today . The old you’ll feel better after two weeks !!!!!

    Merry Crimbo to all 

  • Memory Christmas Brian. You take care xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  •  

    Good luck for today, Loz 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • many thanks, Dani... I'll try and post an update later.. If I feel it's worth it. Slight smile

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Good luck - we can compare notes later.  I'm in seeing my consultant today to talk treatment plans.

    Peter
    See my profile for more details of my convoluted journey
  • good luck, Peter.. see you on updates then.. Thumbsup 

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..