Hi
I finished treatment 5 months ago but for the past 8 weeks every time I bend me neck to look down both my legs vibrate ( it's only my upper thighs). It's like a mobile phone buzzing in your pocket it's quite severe and getting on my nerves. It's every time too.
I just wondered if anyone has experienced this as the nurse said they have never heard of this before.
I'm seeing the consultant in 2 weeks but wanted to know if this is a thing others have had. I feel like a freak as everyone laughs at me. To be honest I'd problem do the same.
Thank you
Kathy
Yes me.
it’s called Lhermitte’s sign.
It hung around for months gradually getting better
Its due to radiation on your cervical spinal cord.
I’m surprised your head and neck nurses have never heard if it.
Here you are Kathy
Hi Kathy.
Hope you get to the bottom of this and that it can be fixed. Let us know how it goes. I’d be interested. There is a lot of autoimmune disease around. Is there a link with cancer or a link with the drugs used to co trol AI diseases? Or both?
