Hi everyone, I haven't started my treatment, and I haven't got a clue what Im in for ??. apart from it brutal any advice welcome please
Hi Smily.
Click on Mark’s name MarkEL
He has a good diary of his treatment.
I have a few pointers in my blog linked at the bottom of my post but I avoided chemotherapy so it may be of limited help.
Have a look too at Hazel RadioactiveRaz she has a great blog linked in her profile.
We are all different and react differently
I personally made a fairly good and uneventful recovery as do most people.
If your cancer is caused by HPV virus it is very curable with rates being over 90%
For the moment I would avoid Google.
Stick around and ask anything you like. Somebody will have an answer.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi I’m Hazel aka Radioactive raz my blogs below. I was T2N2NM HPV positive tonsil cancer. Treatment is hard I was 61 now 66 enjoying life.
Any questions just ask one of us will always help.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi smily, It is brutal treatment, there's no getting away from it, however it is doable, and many of us on here have done it, with good results, and so will you. Just keep your team informed about any side effects you are getting; they will give you something for them. Any questions just ask away on here, someone will always help if they can. Please stay off google, most info on there is wrong, and at best outdated. All the best.
Regards Ray.
Hello. I had a bilateral tonsillectomy followed by 6 weeks of chemoradiation. 30x radio & 6x chemo (Cisplatin). Treatment is very challenging. Recovery has its own difficulties too. Be prepared to prioritise yourself, listen to your body, rest, nap, sleep whenever you need. Take someone with you to appointments so that they can make notes as it can be overwhelming & tricky to remember all the info. Take pain meds on schedule rather than waiting for pain to hit, ask your team all & any questions that you have, & stick with this forum as we all have valuable experiences to share.
Hi Smiley welcome to the club. I posted my fears and problems on here during and after treatment , and received great advice so please post any worries in the future .
I am now 11 weeks post treatment of 30 radio and 6 chemo . During the treatment you feel as if it will never end and can’t see any light at the end of the tunnel . This last few weeks I can feel my strength , hope and myself returning . Going for 5 mile plus walks and playing golf also just about to rejoin the gym to see how I cope . At the moment I am feeding through the peg still and waiting for taste to return ( would give my house away to enjoy a roast dinner ) everything tastes foul but I know it will return sooner or later . Many bad days in front of you but remember it’s a relatively short time and the body then kicks in with recovery . Good luck to you . Alan
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