Hello
Its almost 5 years after radiotherapy for base of tongue. Had two teeth extracted not by my dentist but at the hospital as advised in August 2021.
Last week after months of refusing to accept that the site wasn’t infected, as the oral and MaxFac team at Cardiff ENT kept telling me, despite seeing pus, the results of an MRI showed osteomyelitis. On Monday I had a biopsy where there found extensive dead bone and infection. The consultant said it was ORN. Gentamicin beads were inserted in my gum and I’m on the usual oral antibiotics.
I am so angry.. what were the max fac team doing? Why did this happen when I was under their care?
I recently retired to live part of the year in sunny Kenya. My husband still works there. We took a second home there. Now we are faced with having to rethink our retirement plans. I don’t know what to expect. How long will I need treatment ? Where should I go for the treatment? How will this diagnosis affect my quality of life?
I am grateful that I have reached the 5 year cancer free mark and to be alive but I am scared .. again .
At his next six month appointment there was a significant improvement, much to his consultant’s amazement!
Oh that’s wonderful news. I hope his consultant has taken this on board.
PENTO is usually three years from what others have reported so fingers crossed.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
PS. There is a thread running here
Do you think you could pop in there to give Joe some encouragement. I’d be really grateful
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you....hugs
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
