Hi all hope you are all doing the best you can. Unfortunately at the moment I have pneumonia from the lung collapse/COVID that happened in BRI. TODAY I have been for the mask fitting and planning scan. That was scary. I'm quite concerned that a whole MDT don't know how or what they are going to treat me with next. This is because of the unknown primary. Already exposed jawbone and my current eating problems. Ah well I'm sure they can work it out my first chemo and radiotherapy are scheduleduled for 14th November. I should be done by now and in recovery a for Christmas. I feel like the unluckiest person on the planet lol.thanks Jen x
I'm quite concerned that a whole MDT don't know how or what they are going to treat me with next.
Hi Jen. Did they tell you that? If they did maybe a second opinion might be in order?
At least you have the scan done and the radiologist and oncologist can look at that and decide where to aim the radiation.
I have all my fingers and toes crossed for you
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Jen. Like Dani says who told you that ? Leeds Bexley wing are a excellent cancer centre am surprised someone came out with that statement. Niw they’ve got your planning scans the team will do the planning.
You are within your rights to ask for a second opinion the oncologist s don’t take offence.
Hugs Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007