Update and treatment plan

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Hi all hope you are all doing the best you can. Unfortunately at the moment I have pneumonia from the lung collapse/COVID that happened in BRI. TODAY I have been for the mask fitting and planning scan. That was scary. I'm quite concerned that a whole MDT don't know how or what they are going to treat me with next. This is because of the unknown primary. Already exposed jawbone and my current eating problems. Ah well I'm sure they can work it out  my first chemo and radiotherapy are scheduleduled for 14th November. I should be done by now and in recovery a for Christmas. I feel like the unluckiest person on the planet lol.thanks Jen x

  • I'm quite concerned that a whole MDT don't know how or what they are going to treat me with next.

    Hi Jen. Did they tell you that? If they did maybe a second opinion might be in order? 

    At least you have the scan done and the radiologist and oncologist can look at that and decide where to aim the radiation.

    I have all my fingers and toes crossed for you

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Jen. Like Dani says who told you that ? Leeds Bexley wing are a excellent cancer centre  am surprised someone came out with that statement. Niw they’ve got your planning scans the team will do the planning. 
    You are within your rights to ask for a second opinion the oncologist s don’t take offence. 
    Hugs Hazel xx

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis.