At a loss re dental issues pre treatment

  • 8 replies
  • 86 subscribers
  • 705 views

Hi all and firstly thanks for all you good wishes on our marriage. Our honeymoon was fab apart from constant mouth pain and issues eating due to a dental abcess. We arrived home on Friday am and were with the ENT consultant the same day. I am having a ct guided lung biopsy on Friday this week, results meeting 7th October and TORS surgery week commencing 10th October to try and find the primary. 

I still have dental infection. Nothing has healed since the first round of biopsies and came away with another 2 courses of antibiotics. The consultant asked his dental colleagues to look in my mouth. He said there is ulceration from the biopsies which needs to heal before chemo radiation. All well and good. 

Yesterday I examined the inside of my mouth as something sharp was hurting my tongue. I now have exposed bone or tooth roots along the inside of my jaw. I asked my husband to check too. All this considering I never had any symptoms apart from the lump in my neck. Everytime they examine my mouth something else goes wrong. I'm at my wits end and wondering if they are making things worse. My 2ww urgent referral was 17th June and still no official treatment. Sorry for the long post but I know something isn't right. Jen x

  • My 2ww urgent referral was 17th June and still no official treatment.

    Hi Jen....they haven't got to the bottom of it yet so they can't make plan 

    I would get straight back to your CNS and say somebody from MaxilloFacial needs to look at this. Seems like it wasn't obvious when the hospital dentist looked at it. I doubt it's the examinations but maybe a sequel to the infection you've had. Whatever it is needs looking at.

    So sorry you're being dragged through the mill here. Fingers crossed they can sort you out quickly and that the lung biopsy is clear 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Dani we are waiting for them to ring us back x

  • Great. I hope you get an answer today xx

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi Jen   hopefully yiu get a reply today. Everything x for you. Mouth pain is horrendous as we all know. Did you get to bottom about the appointment for next year? 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi Hazel the CNS says the dentist noticed on Friday and just continue with antibiotics and salt rinses. He said it might heal or maybe not. The appt next year is for the restorative dentist after treatment. 

    • Well they could have told you. Would have saved a lot if worry. At least they don’t think it’s serious. Ask if Corsodyl might be better. That’s what I’ve always taken for any odd traumatic ulcers I get. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • As Dani says they could have told you. Gosh imoressed you’ve got an appointment that far in advance. Let’s get treatment started now! Here when you need us. 
    Hazel x

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • CNS says the dentist noticed on Friday and just continue with antibiotics and salt rinses. He said it might heal or maybe not.

    Jen. Have you been taking any anti osteoporosis drugs? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge