Permanent Tracheostomy - Anyone?

Hi Kj sorry to see you here. I can’t speak from personal experience but my step daughter’s partner was in a fire and had serious tracheal damage. He has a permanent trachy but with a valve that enables him to speak. He speaks up through his larynx but breathes through his trachy. I wonder if that would be possible? 

Hi Dani

Thanks so much for replying, none of us really wants to be on the forum do they and I hope you are staying good.  There's not that much information on the net from patients although I have found a couple of YouTube videos like this one Keeping mucus thin with a trach - YouTube link for anyone else that sees this post, she has a couple that are very good.

I'm hoping that I'll have a speech valve and will know more next week but like most I'm not very good at the waiting bit   Any more info you can share from your SIL's experiences would be appreciated.

Have a great day. Cath x

Forgot to say great blog you have 

Ah Cath. Thank you so much. I’ll get in touch with him to ask some questions for you 

Cath I’ve sent you a friend request can you accept please so that I can send more details 

Hi Dani, just a quick thank you for putting me in touch with your SIL who's eased the anxiety I had ahead of my consultation and given me 5 days of a much happier life, not to mention some very helpful info!  Although it'll be what it'll be, I have everything crossed!  Cath x

Hi Dani, just a quick thank you for putting me in touch with your SIL who's eased the anxiety I had ahead of my consultation and given me 5 days of a much happier life, not to mention some very helpful info!  Although it'll be what it'll be, I have everything crossed!  Cath x

So pleased. Fingers crossed and let me know how you do 

Bless you, thats be not an easy decision to be faced with. 
i to have ACC but of minor salivary gland. I had a temporary tracheostomy as part of my op. I didnt find it easy. I had it for a week. However, if you’re having a permanent one, once a lot of the inflammation has settled im sure you would get used it, get lots of help and there are speaking valves to be had and i also know of a lady who has a permanent hole for trache but no tube!! You will get lots of support. Would it be curative surgery? Will you need radiotherapy? Have you done your research on ACC? Ask your specialist and airway nurses lots of questions. There a guy on here called Chris who I believe has a permanent tracheostomy so im sure he will be in touch with lots of positives about this. 
Good luck with whatever you decide to do and stick around on here for lots of support xxx

Elaine I’m sure Cath is having this because she needs her trachea stented  after treatment. To enable her to breathe.