First radiotherapy done yesterday evening

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Just popped in to say my treatment over here in Spain has begun. 30 fractions and 2 possibly 3 of chemo. I felt nothing during the procedure but was pretty sore immediately afterwards and could only manage half a bowl of soup last night. Took all my meds and went to bed. Woke up this morning with a really dry throat and needing the toilet but (and I hardly dare say it!) the pain I normally have on first waking was not as intense. So I’ve had an oxynorm, some water and a coffee and am going back to bed in a much happier mood! I know it gets better before going bad again, so I’m making the most of any respite I get! First chemo due on Thursday. Hope everyone is ok and looking forward to the heatwave!

  • Well done. First step.

    Yes we are hearing of huge temperatures your way. I have a friend in Extramadura and she says over 40 degrees expected.

    Won't get this high here of course, west Wales might get high twenties. That's good enough for me. I need some warm sunshine for the bees to make honey. They are running on vapour at the moment

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • High twenties is perfect! This high is just too high. You’ve no energy, no appetite and are dripping with sweat again 5 minutes after showering! 

  • Accidentally tapped ‘report to monitor’ when I was replying to you and can’t find a way to cancel it. The website isn’t that well designed is it. Everything is too close together for my fat fingers!!

    MODERATORS - REPORTED IN ERROR!!

  • Yea it’s a nuisance. I keep asking for a two step process. The mods will see it and put it back. Don’t worry 

    Keep cool and all the best for your first week. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • It's ok khrys i have done it a few times and that's with thin fingers Slight smile Must admit I don't like it too hot as I'm getting older. Thanks for the update, keep the oxy-norm handy as it is reliable pain relief. I just noticed the way you spell your name, all the best. 

                                                  Chris 

    Its sometimes not easy but its worth it ! 

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  • The consultant has increased the oxynorm to 15mgs prn so hopefully that will help but then, of course, the constipation and tiredness kicks in. We walk a tightrope trying to manage the pain don’t we?!j

  • Well done Krys. One day at a time. It’s baby steps keep on top of pain medication and laxatives . Take by rote  don’t wait fir pain to start once you’ve got pain keep on top 

    it’s normal easy but you’ll get there. 
    Hopefully  normal summer return ms fir you soon 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Hi Khrys. It’s not for ever. A day at a time and you’ll be surprised how quickly it goes. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Good luck Khrys! 

    Pray 

    Love from Marta x

  • And good luck to you too, Marta x