New Mask to be made - anyone else ever experience this once treatment is started?

Hi Jo I couldn’t log in to the forum for a little while then , it all went well phew nothing to worry about & my mask still fitted ! 

Don't skimp Aly. Take all the ones you've been told to. Glad it all went well

Haha I will thanks Dani xx

Thats great news Aly . I hope you will get through it with ease.  You’re off the starting block now ️

Yes no going back now for us jo xx

Hi Aly 

Hows things going?  . Are you coping okay with chemo .  I have my second chemo on monday and I was given the option of staying in overnight so I went with that offer as that means it can be administered slower and I  can be kept fully hydrated.  I lost more weight from not bring able to eat from ulcers etc and 3 PEG meals a day are not cracking it for me so now have to up meals to 6 over coming days and administer 2 litres of water a day  .

I am advised 10ml oramorph every 4 hrs and paras inbetween and anti sickness three times a day .  I was given a spray to use on my mouth ulcers too , they are in some damn  awkward places though .  

All said, I am approaching halfway and it has flown by.  Hopefully I can try and combat mouth pain now .  My consultant see me for first time  since therapy started and she said the shrinkage on my tumour was fantastic 

I heard someone ring the bell when I was getting zapped today , made me smile , well thats a lie , I had my mask on  but I smiled inside 

x 

Oh Jo so good to hear from you , how people go through chemo for all their treatment astonishes me ! First of all horrific heartburn that eased the next day , my ears & head are fuzzy , sooo tired which is frustrating for me , my mouth is manageable at the moment, just a bit sore at the front .I haven’t eaten properly since Monday really , lost my appetite even with all the steroids! I’m going to have another go tonight . I’m going to mention to them , when I see them about the next chemo as I’ve been told it’s probably from that , my face is a bit swollen but I have colour in it . Also I’m finding I can’t spell or concentrate properly. You aren’t on as many painkillers as me so I hope it’s a consultation to you & I remember you saying your mouth pain went at the beginning, same here not the usual soft pallet. We will get there Jo xx

Jo that seems an awful lot of fluids & food to have if you haven’t been eating , I hope you start off bit by bit , I couldn’t even manage that on a good day ! Xx

Yes , all that you are experiencing is Chemo side effects .  Remember keep drinking as this flushes the chemo through your body - I didnt drink as much as I should have so probably prolonged everything - if you cant drink use the peg but administer it slowly - stop start the syringe .   I am going to be extra vigilant on fluid via my PEG when I get discharged from hospital fellowing my next session .  I didnt use the PEG after my first chemo as it was still so fresh and painfull but if yours is healing nicely and you cant stand to eat or drink by mouth like I couldn’t,   at least get fluid via PEG - its a must , I know that now 

Its amazing how we get to therapy each day after chemo but we do , autopilots kicks in  

x

You need that fluid to flush your cisplatin away from your kidneys. The drip will do the lion share but the drug hangs around for a few days so you do need to get it in. Aly if you are having any hearing problems you must tell your team. Cisplatin can cause hearing damage which is sometimes permanent. There is an alternative if needed.