Hi and Good Evening all.
Firstly I’d like to ask is it ok for me to post on your group as I’ve not had a diagnosis yet. I am having a double tonsillectomy, a lesion removed from my right nostril and a Pandascopy this coming Friday 11th February. My journey started last year but due to ill health I didn’t actually see the ENT specialist until December 2021. I was in hospital 5 times last year with recurring bowel blockages and in September I woke from a operation with the most horrendous sore throat. Although never had that pain post operative I assumed it was because of the breathing tubes etc. Within 2 days I was prescribed a anaesthetic spray to use on the ward and my surgeon asked ENT to come and review me as a impatient. No ENT doctor came and my throat got worse, a blister looking lesion appeared on my right tonsil and days later a 6/7mm hole!! My glands were enlarged, my throat was red and my tonsil was changing. Atlast I seen ENT in December who ordered bloods, x-Ray, MRI and a ultrasound urgently. Fast forward till now the results confirmed a growth, 3 enlarged lymph nodes one either side of my neck and another on my thyroid. My right tonsil asymmetrical, yesterday I signed the consent forms at a pre-assessment and Tuesday I will have a Covid test before the above surgery on Friday. Things have been changing quickly, the main change being the size of my tonsil and a constant feeling of something stuck in my throat! My neck is very lumpy but then that’s been like it for a long time, way before the operation last year but I ignored any symptoms due to months worth of bowel problems! My head is all over the place right now and desperate for answers I’ve made very good friends with Google! Very scared and time seems to be going so slowly when all I want is answer. Has anyone had a similar experience? Could this be something else? Thank you all so much for your time. X
That’s really interesting. Never heard of a back rest. Where were you treated ?
No it was a swimming cap for the plaster of parris to make a back piece which you lay your head into when you lie on the bench . It’s for Extra support and steadiness I think . I’m not sure every trust does that tbh ?
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Ah thanks. The treatment tables at The Singleton had similar head rests. Just not tailor made
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
So I was given 1 week to decide what treatment was better for me, surgery or radiotherapy. Both they are saying is same success rate
What I might ask would be are they going to do a neck dissection even if you are having radiotherapy? If they are then my decision would be to have surgery and keep RT back in case it recurred. Are you HPV positive? If you are then +be cancer responds to radiotherapy very well and tends not to recur.
If RT was going to be the sole treatment I would go with that.
Neck dissections carry some serious long term side effects too but intense physiotherapy overcomes most.
Most patients having RT recover very well.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
