I’ve posted this on behalf of my Mum…
My husband was diagnosed this time last year. He’s had all treatment Chemoradiation although one dose of chemo gave him an AKI (acute kidney injury) it had spread to his lymph nodes in his neck so they have been removed. Ist Pet scan showed a high uptake 3 biopsies were negative although the consultant wasn’t convinced! He was eating well so it was a case of management 3 weeks ago another Pet scan was performed it still shows a high uptake so a MRI with contrast has been scheduled this week. He seems to be now struggling to swallow his voice changed has a lot of mucus in his throat so coughing etc & losing even more weight. He had another nasendoscopy examination it showed again no evidence of cancer. One of his vocal chords are damaged through the tumour. It seems to me that we are going backwards there is talk of removing the larynx. Does anyone think that they just can’t find the spot where the cancer could be? It’s the waiting for results that drives us crazy & now Xmas is on the doorstep so I doubt if we’ll know anything until next year!
can anyone relate to this journey…
Hi Queeny
I am so sorry that your father is going through such a hard time. Not knowing the primary source of the cancer is hard and I know there are others on this forum who are also in the CUP category (cancer of unknown primary). Waiting for results is the hardest and your imagination tends to run riot. You can only try to keep as busy as possible to try and take your mind off it, easier said than done.
Once your father gets his results at least the treatment plan can be put in place and then he can move forward.
Sending you and your family positive thoughts.
Lyn
Sophie66
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007