Recurring

Former Member
Former Member
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Hi my scc cancer has returned. And I am due to start chemotherapy on the 6/12/2021. My first session is 6 hours. Anyone else had the same treatment

  • Hi Clace if you could pop a bit more info on there’s a few on here who have had reoccurrence. Sorry can’t help I did have chemo but that was in conjunction with radiotherapy.

    Hie long ago was your treatment originally and where ? Were you h p v positive?

    Best wishes Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Former Member
    Former Member in reply to RadioactiveRaz

    I had. Radiotherapy between April and June this year. I don't even know much about my chemo treatment. My first is the 6/12 then 3 weeks later that's all I know at the moment

  • I've never heard of chemo as a stand-alone treatment for H&N cancer before so not really able to comment, could you (as Hazel suggested) give us a bit more detail?

    I had a recurrance after six and a half years but that was treated with surgery, radio/chemo was never an option, though possibly might have been if I'd opted for just palliative care I guess.

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Former Member
    Former Member in reply to MikeO

    I had surgery in march told they had got all the cancer. Then started radiotherapy in April. It ended in June. Now they tell me the chemo is to stop it spreading. Its hasn't reached any major organs. That is all I know

  • There are a few people here who are on immunotherapy for recurrence. What chemo are you on? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beesuit

    I don't know which chemo I'm on. Only found out this morning.  I'm going to have chemo. I don't think I was told. If I was I don't remember

  • Triple therapy with platinum, cetuximab and 5-FU are the current NICE recommendations I understand. 
    OR immunotherapy. 
    If you look here there are a few threads 

    https://community.macmillan.org.uk/search?q=Immunotherapy&group=100#serpsort=date%20desc

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Former Member
    Former Member in reply to Beesuit

    Inumontheraphy hasn't been mentioned. Forgive spelling

  • Ok. Let us know hiw you get on. We’re all here to help you along. Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Former Member
    Former Member in reply to Beesuit

    Thanks and I will. Take care