Memory loss following treatment for tonsil cancer

FormerMember
FormerMember
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Hello, 

I've been reading posts on the forum for a little while but haven't posted yet. 

My Mum was diagnosed with tonsil cancer earlier in the year. She has just finished 30 radiotherapy sessions and had 2/6 chemo treatments (but this made her too poorly). She was in hospital for 2 weeks alone (we couldn't visit due to Covid measures) during treatment as she had an electrolyte imbalance. 

Since finishing treatment my Mum has had problems with her memory. She was 'ok' for about a week at home after treatment. Then she was called into the hospital for a checkup with the speech therapist and Macmillan nurse. Since this she has been having memory issues. She is struggling to remember the treatment / her hospital stay and cannot seem to remember anything that has happened recently. She can remember some things from the past but this is quite patchy. 

My Dad called the 24 hour hospital helpline and they said they would note it on her chart for her next checkup (4th November) and that it might be caused by stress as she has been through so much. We are really worried about getting my Mum to the hospital for this as she is afraid of having to go back onto the hospital at all and we don't want to cause her extra stress and make things even worse.

Has anybody experienced any memory problems after their treatments? We feel at a bit of a loss for what to do.

  • Hi

    Im sorry to hear about the difficulties your Mum is having with her memory. I have had surgery for cancer underneath my left tonsil. My tonsils were removed as well as part of the base of my tongue. I had a further surgery as the cancer was a bit deeper, they got it all, and I have been lucky enough not to have needed radiotherapy or chemotherapy. However, I am in a medication called pregabalin to help with nerve pain while I recover. This has affected my memory, not to the same degree as your Mum, but I find myself not being able to recollect things. I spoke to my cancer nurse and he assured me it is temporary. Please see if you can have a discussion with your Mums designated nurse, just to rule out any possibility it’s any medication that she is on 

  • Hi Monkies, welcome to the community and so sorry to hear your mum has taken such a backward step. Memory loss after chemoradiation is common but it generally improves. The chemotherapy can cause the condition folk refer to as chemo brain and radiotherapy delivers a small dose to the posterior cranial fossa which houses part of the brain... Your mum's seems quite extreme so do please stress at her check up that it needs to be addressed. The treatment is awful as you know., with it peaking just about now she is going to be feeling really bad..and coupled with her stay in hospital it's not surprising. You don't say how old she is. That may have some bearing on it too.Can your GP offer some support? Lots of folk here get through with a short course of antidepressants  I hope you find a solution. Best wishes

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to Beesuit

    Thank you so much for both of your replies. It really helps knowing other people have had some memory problems following treatment.

    I am going to try and contact our GP to see if he can do a home visit to check her out.

  • Good luck and let us know how you get on 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Best wishes

    lets us know how you get on, remember you are not alone 

  • If the dementia test  https://memtrax.com/about showed moderate dementia and he refused treatment, this explains the worsening of his illness. I believe that dementia has become progressive. More often, dementia patients become aggressive and hallucinate, as you said. Speech becomes incoherent, and the patient forgets how to do basic things like wash or eat. My grandmother was diagnosed with dementia eight years ago, and her condition gradually worsened due to her refusal to take pills. She even forgot my sister and me.