Lip sores

Hi Julie well done on progress so far. Yes try the suggestion but remember nothing petroleum jelly based on lips. Don’t use most lip  balms and never before treatment it can cook. I used burts   bees honey based lip  balms but onky after treatment. 
Hazel x

Unfortunately sores have got much worse and my temp went to 37.9 however much I tried to ignore it!

Currently in MAU drinking hot chocolate through a straw wondering how 3am is not 6am as I'm wide awake and body clock is out of whack.

Have just been given a tube of daktarin gel which I would kiss if my lips weren't so sore.

Am now starting to understand all the conversations about how vile oral thrush is :-(

Hopefully some ok blood test results and the pre-emptive antibiotics will see me going home in the morning.

Never a dull moment!! 

Oh you poor thing. Hope they let you home soon If you have thrush Daktarin in is no good. You need Fluconazole. 
PM me your address and I’ll send you some lip balm. All organic and wax from my bees. 

Thanks Dani,

Just arrived on the oncology ward, she said exactly the same thing!! They are being very thorough because of the temp but she said they might even keep me in tonight because of the state of my mouth!!

Will do the address thank you very much x

Julie take care and I hope this is only a passing thing and it soon gets better.

Hi Julie Dani’s said it daktarin or nystatin doesn’t work onky flucozonole I had several bouts of oral thrush  . Radiation oral thrush doesn’t resound to those. Good luck let us know how you get on. 
hugs Hazel x

Home from hospital - yay!

Discharge letter has me down for grade 3 mucositis.  Consultant didn't think it was thrush this morning.  Discharge letter says I have been given Difflam and gelclair.  I can see the gelclair, I'm presuming Benzydamine Hydrochloride is non brand Difflam?  Hopefully they will help anyway.  Not going to bother using the Daktarin.

No raised CRP level and white bllod cell count OK so no sign of infection.  My temperature seems to be a law unto itself.  Did read an interesting study about a certain percentage of chemo patients who have low grade fever after chemo for no reason, especially when they are also having radiotherapy.  Guess I must just fall into that category!  

Thanks Peter, was a very smooth hospital stay and managed to not pass out when they took blood this time which was a bonus!!

Gelclair is good you can dilute it I used it through treatment snd still have it in for those just in case day’s. Yes same as difflam . 
the gelclair can sting. Unfortunately mucosal issues are a major side effect. 
glad you are home 

Hazel bx

Even though I have done it twice before, I have totally forgotten how to do a friend request / message Dani!!