Has any one opted not to have surgery ?
Hi and a very warm welcome to the online community
Having to make treatment decisions can be very hard and I hope that some of them other members of this group will be along soon to tell you about their experiences.
In the meantime I'm tagging this groups Community Champions chris2012 and Beesuit as they may be able to help you further.
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
Thanks Latchbrook
Im sorry I should have been here earlier. I did see the post and went away to think about it.
As far as I know this is a fairly aggressive tumour and surgery plus radiotherapy are the standard options.
so what aspects of surgery are you worried about? I know there is a danger of facial nerve damage. Have you discussed this with your surgeon? I can’t really suggest much else and a search on this forum reveals few posts about it reflecting the cancer’s rarity.
Come back and give us a little more detail and maybe we can help.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007