Stomach peg inserted yesterday and feeling constantly sick.

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I have just had a stomach peg inserted. Today is my first day home with it. I am heaving constantly. I am scared to attach the feed as I know this will make me sick. I am seeing the nurse on Monday. This is the weekend and I feel very scared that all this wretching is going to do me harm. Is this a normal thing to happen? I don't want to go to A&E for no reason. I would love some reassurance.

  • Hi Rossi 

    A warm welcome to the community  So sorry you have to be here but we are a friendly bunch and somebody will always be around to lend a hand  

    First don’t worry about retching too much it shouldn’t dislodge anything  

    Maybe just put some water in to keep you hydrated  for now 

    I didn’t have a PEG but I’ve messaged a couple of people who did have them and asked them to pop on with their advice and  will be along soon. He is a PEG expert. Wink

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Rossi5000, sorry to hear you are struggling with the feed, i did not like it when i was pump-fed in hospital as i just brought it back up. Sometimes its just the feed that does not agree so trying another one could help, or maybe your stomach has shrunk and you are having too much feed going in so the delivery rate needs to be slowed down. All i can suggest at the moment is to cut back on your feed and phone the dietitian or one of your team on Monday. This does happen to other patients where the feed can be too rich, im not sure if there is something you can take to settle your stomach, maybe if you phone 101 they will put you in touch with an out of hours Dr. Please dont get too alarmed about the sickness as it does happen. Can you still put water through your PEG to keep you hydrated? Feel free to re-post if you need more help. Take care.

                                                                                     Chris.x 

    Its sometimes not easy but its worth it ! 

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  • Thanks Chris. That has helped put my mind at ease. I'm hoping to get through until Monday, when I have an appt with he nurse. I have had more problems with the feed tubes than I had with the Operation and Radiotherapgy. I didn't sleep a wink in hospital last night, so I'm going I will be able to tonight. I've forgotten about the pain on the PEG itself. I will update this message with any progress.

    I appreciate your reply.

  • Many thanks f for that. I really appreciate it.

  • Hi there 

    Dani () just asked  me to pop on here to see if I can help.

    Do you need to use the PEG straightaway for food? If not, all you need to do is flush it through every day with cooled boiled water.

    My hubby had his PEG inserted before he started radiotherapy so he was flushing it for a month before he actually needed to use it.

    I can’t lie, when Ken had it inserted he was really ill for the first week with it. However it turned out to be a godsend in the end.

    He was retching and in so much pain with it initially. He ended up at the GPs a few days after it was inserted. Turned out he’d got an infection. 

    Have you got a district nurse? Or a Nutricia nurse? We found they were invaluable with the PEG. I think the district nurses have a 24 hour telephone service. If you’re not under the district nurses ask your GP to make a referral. They are honestly great.

    My advice would be that if something doesn’t feel right, then it usually isn’t. However......I wouldn’t go to A&E just yet.....see what tomorrow brings. If you can get through the weekend then you can get some tailored advice from your own team which is usually better. However if you really can’t manage the retching and heaving then of course you should seek some help now.

    Please let me know how you get on.

    Sharon xx

    Hubby - Left tonsil squamous cell carcinoma P16 positive with neck nodes T1N1M0 - 30 fractions of radiotherapy and 6 weeks of chemotherapy, Cisplatin in December / January 2019/20

    Me - Invasive lobular breast cancer - Grade 2, Stage 2 - mastectomy October 2019 - 15 fractions of radiotherapy December / January 2019/20 

     
     
  • Hi Sharon.The PEG replaces the NG tube. I was having problems with the NG. 3weeks ago, I was sick and the bottom of the tube appeared out of my mouth! That was very odd.

    My food and Meds to through the PEG until I can swallow safetly. I was panicking earlier, after being discharged after 48 hours. I am trying to put water through, to stay hydrated and one painkiller before bed tonight.

    I have a Nurse coming out to see me Monday Morning, so it's not too long to wait.

    Thanks for taking the time to reply. I hope when I can get through this phase, I will be able to advise others.

  • Hi Rossi

    That does sound like it may be the actual feed mixture upsetting you. There are others they can give you usually. I suffer from some allergies so they gave me some different ones to try before I had my tube op. You do need to watch out for infection though so as the other good people have said, do talk to them on Monday. I couldn't get on with the vanilla one oddly (in fact I think its put me off vanilla for life) so if you have different flavours it may be worth trying changing that.

    Jon

  • Thanks. I'm On 2Cal, which is not pleasant. The sickness was after I had had the PEG inserted. It. May be that I as just bloated from the procedure. I was just a bit worried, being at home on a weekend. I just ha the one evening on the Ward after the op..

  • I was having problems with the NG. 3weeks ago, I was sick and the bottom of the tube appeared out of my mouth! That was very odd.

    The very same happened to me. The first time it happened it was replaced and the second time I just took it out and threw it away.

    Tell us a bit more about yourself, it helps us respond to your questions better.

    Hope you're on the mend soon and feeling more comfortable.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to Beesuit

    As I have now been using a peg for four years I can say first make sure the peg is not the problem. The only good peg is the monarch one. https://www.gbukenteral.com/pdf/Monarch-Care-Guide.pdf

    It is of course possible you have the wrong feed, but it would surprise me.