Got the call I didn't want today

 Please do I need to do something so people can reply ? 

Hi Minmax . Welcome to the club that none of us ever wanted to find ourself in buy you've  come to the right place. We are a small tight night group who help each other. I am Hazel 27 month in from h p v 16+ tonsil cancer with several affected lymph nodes. I had 35 radiotherapy sessions and tow out of a planned 3 chemotherapy. I can’t lie the treatment is hard but if I can do it anyone can .Theres a lot tongake in when yiu feel up to it I’ve a blog with links to other sites detailed below. Remember we are all different and react differently .

As a time scale I got final diagnosis confirmed 26 June  I didn’t need any teeth extracting ,not everyone does and treatment started 16 July I first went to Dr 14 May put in 2 week cancer pathway..My last treatment was 31August 2018 .

Best advise  Keep off Dr Google you will only scare yourself ,stick to on trusted cancer sites like here. We really have been there and done it.

keep in touch always someone around who will get back to you ,well in daytime hours !

stay strong

Hazel 

Hi Minmax some days people pop on in a morning or if everyone’s busy  might  be later on, I have replied hope you’ve got my reply 

Hazel

Many Thanks Hazel 

No problem any questions just shout out 

Hazel

Good evening Minmax, sorry to be reading this post, as you say, not the best Christmas present. Things will move really fast and you will have quite a few appointments and test, scans etc, so once these have been done it will be full speed ahead with the radio and chemo. I like Hazel had 30plus radio and 3 chemos but in a different area, but did not suffer that bad, we all react and recovery differently but the main thing we all get through it one way or the other. Like Hazel said you should get more advice, help, and encouragement in the morning from the other lovely people in this group. Unfortunately, i had to have a couple of teeth removed for the radiotherapy. Wishing you all the best on your journey which we will try and help you get through, take care.

                                                                        Chris x

Hi Minmax and welcome.

It will probably all be a bit of a blur from now on. Once you have a diagnosis they don't tend to hang around but they have to get a lot of different people involved in the planning and treatment so it may seem like nothing is happening at times. There will be a lot of information to take in so I'd advise taking a notebook to all the meetings and writing everything down and also write down any questions you have. Don't be scared to ask them or on here, the only daft questions are the ones you don't ask. As advised it really is best to avoid Google as it gets very dated and is misleading a lot of the time, rely on the experts who have lots of experience dealing with these cancers.

There is a wealth of experience here. I had 35 radiation sessions and 5 chemo 8 years ago and I'm still leading a pretty normal life. The treatment is tough and nobody will hide that from you here but there is lots of help and the recovery rates are very good.

All the best

Jon

Hi Minmax

Not much to add to the posts from folks before me. Things will move fast and you should be in treatment by Christmas. It does take time for the right treatment plan to be put into the computers that work your radiotherapy plus if you have teeth out they will need that to heal before they start.

It's a tough treatment but doable. You will have questions so pop in as and when you need some help.

Minmax said:

 Please do I need to do something so people can reply ? 

There tends to be a sort of morning and night shift here. I don't know how other's notifications work but I do get pretty instant notifications of private messages so on that basis feel free to send a friend request to any of us and we might be able to help faster if you are in dire need or just fancy a private chat.

Best of luck

Many Thanks Chris 

 Many Thanks Jon , The surgeon rang me yesterday morning as I was given a letter after my biopsy and panendoscopy which said conflicting things like nodes on the right and nodes on the left which I apparently have both and one on my chest which he said they would keep and eye on . We had a  good chat and he will be discussing my case  and I am meeting them next week with a plan hopefully