Tonsil cancer - Chemo/radiotherapy treatment imminent. Advice welcomed.

Hi Jo,

I had the same as you by the sound of things. I am now 5years and 6 months post treatment and cancer free.

The treatment can be hard but how hard varies for different people. I found it harder toward the end but I did not have a feeding tube and looking back I think I would really have done better with one as I was very fatigued. Basically I lost normal taste and everything including even water tasted bad to me, hence me loosing lots of weight and becoming dehydrated. I have the opposite problem now, I am overweight as I eat lots of cake.

Post treatment people have varied experiences of recovery. I have some issues that have developed over the years, but I am still here!

Regards

Phil.

Hi Jo,

I’m just over 6 month post treatment, hpv+ right tonsil and lymph nodes, weekly chemo and 6 weeks daily radiation. Treatment is rough but you’ll get through it. Most everything has been said, stay positive, trust the team, don’t bottle stuff up, they are always happy to speak to you and support you.

I’ve just been given a tentative all clear, though many more follow-up checks to come.

Be strong, Kevin