Hello All
Last May I was diagnosed with SCC of the Epiglottis, had 2 lots of Laser Resection and got clear margins. Thought great that wasn't too bad I have beaten Cancer...….
Well check up in January not too bad said the stump was slightly raised come back in 5 weeks instead of six. Two weeks later I developed a lump on my top lip. Saw my dermatologist and he said you need to see maxilla facial I am certain this is a SCC. So I bought forward my check up by a week and they called Maxillo facial in. By now lump had grown, they did a biopsy same week and it is cancerous. At the same time a new growth was noticed on my Epiglottis, so was referred for biopsy. While this has been going on Respitory have been watching a couple of lung nodules. So I have a possible 3 sites of Cancer. Been to MDT today and Radiotherapy is the treatment for my lip. Biopsy still needs to be done on Epiglottis, but Pre op would not clear me for surgery until I get results of latest lung scan also done today. I feel like I am going round in circles waiting for someone to make the first move and no one can tell me if I have a secondary on the lip from the Epiglottis or a new primary I am getting so confused with what is going on. I was trying to ask questions today and the Radiotherapist consultant said we have to get started or opt for Chemo for palliative care. Are you all confused yet because I am. So then the dentist arrived and thank god I have good teeth so no delays to start of Radiotherapy as the lip tumor is still growing and too large for surgery that might leave me with something resembling a face. Was warned that it will be very painful because of nerve ending etc. It is already so not sure how I am going to cope with even more pain and struggling to get any food in my mouth already and drinking through a straw so HELP...
Hi Paul we are all rooting for Mo aka St Bernard Lady , but yes you're right a lot of the treatment is patient led , in my case after 2 chemotherapy I was given the choice of having the 3rd I turned tables on my lovely oncologist by saying ok if I was your wife and she had handled everything like I had and her treatment had followed the same as me what would you advise .His reply was umm interesting turn around I would say let’s not push for the 3rd one youve handled the 2 so well no sickness no tinnitus.So I said yep that was my decision anyway .rant over
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Paul at the top of page groups blog ask an expert ,news help notifications messages friends
hot the friends symbol pop up page send request I will accept then send me phone number if yiu use what’s app
H off to bed now so no rush you’ve got treatment tomorrow x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Spring has sprung,the grass has Riz,
I wonder where the flowers is......
On yonder hill there stands a coo,
It's no there noo,it must have moved.
Here lies John bun who was killed by a gun,
His name was not bun but wood,
But wood would not rhyme with gun
And bun wood.
Morning all
Paul x
Hi Paul hope today’s treatment is ok ? I’ve sent u s friend request so on top bar there envelope and friends symbol there should be a message. Failing that click on my profile and it will say in green add a friend
like the poem
hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
I did exactly the same thing re asking consultant "if it was your wife what would you recommend". I did feel bad but, 26 years ago there was no google, just a library and a book suggested if you were in a dilemma..... I got an answer and although it wasn't a route I wanted to take for BC, I think it took away a lot of needless worrying.
Hi Paul hope your treatment is going OK I expect the problems are starting to kick in now. Keep strong.
Quick update got a call this morning and my surgery biopsy excision is booked for tomorrow morning got to be dropped off at 7.30 am, no one allowed in with me, so off to bed soon. Still don't believe it will go ahead until they wake me up on the other side. Anyway 5th time lucky if we get this done then the mask fitting should be able to go ahead on 22nd April and depending on results from surgery as to if they are targeting one area or two. Fingers crossed, hopefully be able to confirm its been done tomorrow or the next day if I have too many drugs in the system.
Sleep well all.
Mo xx
Brilliant news.
Good luck
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good luck for tomorrow Mo. Be thinking of you
Linda x
Thanks for the update Mo, hope all goes well for tomorrow, good luck , take care.
Chris x
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