Hello All
Last May I was diagnosed with SCC of the Epiglottis, had 2 lots of Laser Resection and got clear margins. Thought great that wasn't too bad I have beaten Cancer...….
Well check up in January not too bad said the stump was slightly raised come back in 5 weeks instead of six. Two weeks later I developed a lump on my top lip. Saw my dermatologist and he said you need to see maxilla facial I am certain this is a SCC. So I bought forward my check up by a week and they called Maxillo facial in. By now lump had grown, they did a biopsy same week and it is cancerous. At the same time a new growth was noticed on my Epiglottis, so was referred for biopsy. While this has been going on Respitory have been watching a couple of lung nodules. So I have a possible 3 sites of Cancer. Been to MDT today and Radiotherapy is the treatment for my lip. Biopsy still needs to be done on Epiglottis, but Pre op would not clear me for surgery until I get results of latest lung scan also done today. I feel like I am going round in circles waiting for someone to make the first move and no one can tell me if I have a secondary on the lip from the Epiglottis or a new primary I am getting so confused with what is going on. I was trying to ask questions today and the Radiotherapist consultant said we have to get started or opt for Chemo for palliative care. Are you all confused yet because I am. So then the dentist arrived and thank god I have good teeth so no delays to start of Radiotherapy as the lip tumor is still growing and too large for surgery that might leave me with something resembling a face. Was warned that it will be very painful because of nerve ending etc. It is already so not sure how I am going to cope with even more pain and struggling to get any food in my mouth already and drinking through a straw so HELP...
Hi Mo, are not allowed to walk the dogs once a day as part of the exercise period we are allowed, this is a tricky one reference the operation, I would have thought you would be put in an isolation ward once it's done and during recovery due to any problems that might occur. But I can see why you are worried as your immune system would be at risk with your lungs. You sure could not have picked a worse time to have your surgery etc. Hope they will let you know on Friday what their intentions are, i.e does it have to be done now or can it wait without causing more issues. We will get through it all if we stick and support one another. Sending a virtual hug (( )), take care stay safe Mo .
Chris xx
Its sometimes not easy but its worth it !
Bless you, Mo, i did not realise what a tough time your family is going through, maybe after a couple of days you will settle down to a routine. These things are sent to try us so hand on in there, we are here if you need to talk or vent, which is quite acceptable on here as most of us have gone through rough times, it just makes life so difficult with this virus hanging around. Nothing wrong with shedding tears, it's better than bottling it up. Yes pets do know when things are wrong and I am sure they will help you with their special kinda love, what would we do without them. Love and hugs .
Chris xx
Its sometimes not easy but its worth it !
