Hello All
Last May I was diagnosed with SCC of the Epiglottis, had 2 lots of Laser Resection and got clear margins. Thought great that wasn't too bad I have beaten Cancer...….
Well check up in January not too bad said the stump was slightly raised come back in 5 weeks instead of six. Two weeks later I developed a lump on my top lip. Saw my dermatologist and he said you need to see maxilla facial I am certain this is a SCC. So I bought forward my check up by a week and they called Maxillo facial in. By now lump had grown, they did a biopsy same week and it is cancerous. At the same time a new growth was noticed on my Epiglottis, so was referred for biopsy. While this has been going on Respitory have been watching a couple of lung nodules. So I have a possible 3 sites of Cancer. Been to MDT today and Radiotherapy is the treatment for my lip. Biopsy still needs to be done on Epiglottis, but Pre op would not clear me for surgery until I get results of latest lung scan also done today. I feel like I am going round in circles waiting for someone to make the first move and no one can tell me if I have a secondary on the lip from the Epiglottis or a new primary I am getting so confused with what is going on. I was trying to ask questions today and the Radiotherapist consultant said we have to get started or opt for Chemo for palliative care. Are you all confused yet because I am. So then the dentist arrived and thank god I have good teeth so no delays to start of Radiotherapy as the lip tumor is still growing and too large for surgery that might leave me with something resembling a face. Was warned that it will be very painful because of nerve ending etc. It is already so not sure how I am going to cope with even more pain and struggling to get any food in my mouth already and drinking through a straw so HELP...
Hi Mo.
Good grief that sounds a nightmare, but I see you say you are better than you were. You deserve some respite after the trials and tribulations.I hope you go on and on getting better.
Love to Sherman too xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hello All, hope you are keeping well. Just thought i would check in before I start next 4 weeks of radiotherapy tomorrow, going to look like Rudolph with a glowing red nose this time. Also had full CT scans last week ready for the Chemo, have face to face with oncologist on Thursday as he wants to get started ASAP. Going to be on Carboplatin and Etoposide infusions with some tablets to take at home as well for 3 months. Also going to lose my hair with this mixture. Apparently the Tumour was actually inside of a chest Lymph node which is why I need to have this. My poor old body is starting to reach its limit so tired all the time. Also think I am a bit aneamic so got to have blood tests and possible iron infusion before they start the poison. So not looking forward to being nuked and fried over the coming weeks. Will it ever end me thinks. Possible NG tube as well because I have still not gained back any weight and not eating a lot, just cant face it.
We had a tiny bit of snow this morning so managed to introduce Sherman to it, dont think he was impressed.
Hi Mo. Sherman looks very dour about his wet feet
Hang on in there you’ve stuck it this far. Your team isn’t giving up on you and neither are we in the community.
Best of luck with the treatment
xxx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
