Hi everyone
We’ve had a bad few days starting with Ken’s PEG Tube falling out and no one knowing how to put one in for 7 hours!!
Anyway that crisis has now been resolved but Ken is really suffering with a dry mouth. The stringy mucous stuff that was choking him and making him gag has gone, only to be replaced by a mouth as dry as the desert!
Ive found an NHS Trust care leaflet for H&N cancer patients that suggests a nebuliser with saline solution. We’ve never been offered this. Should we ask for one? Who would give us one? Has anyone used one? And if so, does it work?
Also, while I’m here......how do we instigate acupuncture or are we trying to run before we can walk? Ken is just over 4 weeks post 30 radio treatments and 6 chemo sessions.
We have XyliMelts (but he can’t use them right now as there’s no saliva to make it stick) and Caphosol. We also have Glandosane synthetic saliva spray but we were told not to use it due to its acidity and effect on Ken’s remaining teeth. I’ve tested it and it’s PH 5.5. Should he use it? And what about Biotene mouthwash?
As ever, grateful for your thoughts and experiences. Apologies for so many questions. Xx
Thanks Chris,
On our way over again for my leg dressing. I know some one else who used Aveeno. I am going to put it on when l go to bed and after the radiotherapy. Can only try.
I'm going to wall mount my mask and cover it with flowers, butterflies, frogs and bees 
Well that's my plan!
Val x
Aveeno is great. I use it when my lichen planus flares up.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Way to go, Val!!!!
im not that interested in clothes but some skinny jeans were just the ticket 
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Dani,
I love shopping, clothes, shoes, handbags and makeup.
Not my priority at the moment. Not worn makeup since December. Wear trainers because of my leg, leggings and comfortable shirts or jumpers. Don't forget a pretty scarf
Val x
Val.
I’m hopeless. That’s what comes of living like a farmer!
I had to be smart for years when I was working.
I like gadgets though
My Mac has just died. I looked at replacing it last week anyway.
ive just spent £1300 at the Apple store!
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
