Compare trial Queen Elizabeth Birmingham

FormerMember
FormerMember
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My husband has just been diagnosed with right tonsil cancer with spread into the base of his tongue.  He has been offered the possibility of going on  a trial where along side the radiotherapy and chemotherapy you are given immunotherapy.  I wondered if anyone had experience of this or any comments on it?

  • I had simply radiotherapy for T2 P16 base of tongue SCC so not quite the same but my reason for replying is that traditionally immunotherapy is offered if the cancer comes back and no other treatment is working BUT the Americans have been looking at it and have been trialling the very same.  I think the results are very encouraging to such an extent that some centres are offering it right at the beginning of treatment. I think this is an exciting innovation. I was going to ask my onc consultant about it at my next appointment. 

    Be guided by what your team advises but I can tell you that had I been offered this I would have jumped at the chance

    Good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Maggiedel, i would agree with Beesuit as well as i had floor of the mouth and base of tongue cancer and just had radio and chemo after my operation and unfortunately, it came back so any new ideas are worth following up. All the best and good luck.

                                                                                         Chris x 

    Its sometimes not easy but its worth it ! 

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  • Hi can’t help re immunotherapy but I too was diagnosed with right tonsil cancer spread to several lymph nodes last May . I have a blog detailing my experiences good and bad 

    www.radioactiveraz.wordpress.com pop by it might give you some tips. 

    Like beesuit days discuss with your team I am all for new advances 

    good luck keep in touch 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/