Waiting

I am just about to start 2 x cisplatin and 6 weeks radiotherapy for back of tongue and neck lymph nodes. I hope you do not mind me replying.

Regarding  the images all look good" does this mean in terms of it's working I.e the lymph node is getting smaller or just in terms of the radiation is going to the right place. I would ask the question to your oncology team.  

I hope you continue to be well. As i say I am just starting this journey, but I will ask questions and , I was going to say not worry, but of course I am worried. I will always question every stage I am about to begin. My Peg gets fitted Monday 14th. 

Hi KMJ19 ,  well done for getting to this stage as it's not easy in some cases, i never had a repeat scan of any sort after my treatments or surgeries. They will compare the old scans with the new scans so they can see what has been happening. The main point they will focus on is the tumour to see if it's behaving itself and if the surrounding area is ok. Please try and stay positive as i found it helped me cope better. Good luck with the scan results, take care.

                                                                          Chris x 

Hi Chris, 

Thank you for replying. 

It's just the waiting I'm struggling with but this is going to be the next five years so I need to get used to it! 

Best Wishes 

X

Good morning Geolind, 

Thank you for replying.  

Good luck with your treatment and with your peg fitting - I'm waiting for a date to get mine removed!! 

Best Wishes 

Kelly x

Hi geolind,

Good luck going forward, just read your post and my diagnosis and treatment plan was identical to yours. 

Just finished treatment on the 11/9 and just a month post treatment now. 

Been told my pet scan will be straight after Christmas which to be honest suits me fine as I just want to get back to normal regards eating etc,any questions as you go through your journey feel free to ask,everyone on hear has been great regards tips or answering any queries you have 

All the very best

Martin 

Hi,

thank you for posting your experience on this forum.  My husband has just had the same diagnosis and is starting the same treatment in a couple of weeks so its so encouraging to here that you have got through it well done!  I do hope your scan is ok I am sure a positive mind helps.  Good luck xxx

Hi Maggie  

It was a tough 6 weeks but hopefully worth it. 

The very best of luck to your husband. He must be kind to himself and accept all offers of help. 

Best Wishes xx

Hi Martin, 

Thank you for taking the time to post. 

Hope your recovery is going well. 

Best Wishes 

Kelly x

Hi Kelly glad you’ve come back on line have been thinking about you. As far a small I know the radiographers are looking at where the beams are being directed nit actually at the cancer just making sure they are lining everything up right. Hang in in there yiuve come this far don’t stress about pet ct scan take everything a day at a time

Hazwl x

Hi Hazel, 

Your posts always make me feel better

I've had my peg removed today so am feeling great. 

I'm taking your advice and not worrying about a scan - I'm slowly feeling more "normal" and dont want anything to hinder that which stressing out and worrying will. 

Hazel, I hope you are still enjoying your amazing recovery and as active as you have been. 

Best Wishes 

Kelly xxxxx