Steroids?

I don't know for sure but I think the steroids help along with the three or four other things they gave me to combat the affects of chemo and will not help with the radio so would think there would be no reason to have them, I don't think the sickness should keep going but the thick saliva or whatever it is and tiredness will go on for some time, it varies with different people so couldn't say how long.

Hi Ron

thank you for your reply, much appreciated 

L

Hi, bluebird6, first of all well done to your husband completing his treatment, his recovery can now begin. The next 2 weeks after treatment has finished can be challenging, not only with side effects but also with the fact that you are no longer going to see the team on a daily basis, this can make you feel alone. However if you have any worry's, do contact them they will always be happy to help with your concerns. As for the sickness did they give him some anti sickness tablets( not steroids), these are very good. And always ask on this forum about things that worry you, someone will always help if they can. Best wishes to you both.

Regards Ray.

Hi Ray

thank you !!! yes last radiotherapy just done 1st thing this am, bell rung, relief mixed with as you say OMG what do we do now and will we cope with what the next two weeks has to throw at us. 

Completey peg feeding now and on MST plus regular oromorph top ups! I’m just about to start on the neck dressing s as the skin is breaking down. So we are in full swing of everything as described by people who have gone through this on here. 

L

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Hi, Bluebird6, after my treatment had finished, my neck was in a real state, so they gave me a cream called FLAMAZINE, my wife applied this cream to my neck each morning for a week, result was remarkable, in such a short time. It might be worth asking your team if they will prescribe this for your husband.

Hope this helps Ray.

From one old biker to another old biker, so you really got it in the neck from your beloved!

Cheers,  Tony

Hi congrats on finishing treatment best advise I can give you don’t let him over exert himself  remembers his body now hasn’t the max radiotherapy and chemotherapy in it and it has to slowly leach our I liken it to an oil filled radiator slowly releasing the heat. Remember in Monday it’s the first day of the next phase some of us take longer than others I am a year post radiotherapy next week where has that time go e out if a score of 10 I would say I am  in  between 9 amd 9.5 still have a few bad days so dry  mouth being my everlasting  nemesis.i was lucky  

never lost taste but food no longer hold great pleasure it’s a means to an end but in the scheme of thus we’ve done 4 trips to Spain since last October I can ride my bike so am proof that there is light at the end of the tunnel albeit a few twists and turns I. It. Don’t struggle any questions just ask someone will get back to you .

Hazel

Hi congrats on finishing treatment best advise I can give you don’t let him over exert himself  remembers his body now hasn’t the max radiotherapy and chemotherapy in it and it has to slowly leach our I liken it to an oil filled radiator slowly releasing the heat. Remember in Monday it’s the first day of the next phase some of us take longer than others I am a year post radiotherapy next week where has that time go e out if a score of 10 I would say I am  in  between 9 amd 9.5 still have a few bad days so dry  mouth being my everlasting  nemesis.i was lucky  

never lost taste but food no longer hold great pleasure it’s a means to an end but in the scheme of thus we’ve done 4 trips to Spain since last October I can ride my bike so am proof that there is light at the end of the tunnel albeit a few twists and turns I. It. Don’t struggle any questions just ask someone will get back to you .

Hazel

It is worth asking about steroids, I’ve been really struggling with nausea and vomiting and was hospitalised last week because of this. This weekend they have sent me home on a low dose steroid to help with the nausea and are reviewing it again on Tuesday. I’m half way through my treatment now. 

Hi Hazel 

thank you fir your encouraging reply, it’s good to hear that you are enjoying those aspects of your life again. You do wonder at this stage what lies ahead now and how long it will be before we see any improvement, I realise these are impossible questions to answer at this stage, as has been highlighted on this site, everyone’s journey is individual. 

But thank you fir your good wishes and it’s encouraging to hear there is light at the end of the tunnel as it’s all a bit full on right now with dressings, what seems like endless peg feeding and fluids etc. Nebulisers, humidifiers to fill, etc etc. Not to mention the medications cocktail! 

But all being well we don’t have any hospital visits to fit in next week, so hopefully can catch up. 

Totally taking on board your comment re rest, we have just done everything for him, feeds dressing etc,  this am and I’ve just packed him off back to bed as he was literally falling asleep sitting up. I guess the MST and oramorph  makes you sleepy as well. 

Oh well, brief respite now before the lunchtime feeding and watering round begins. 

I have three animals who also need feeding and watering too so I’m pretty busy!

thanks again 

L

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