There is a light at the end of the tunnel

Great to hear from you Bigfeet , I remember the beginning of your journey so its great when people post good news like this with plenty of positive outcomes , thanks for sharing ,best wishes for the future ,take care.

                                                                                             Chris x

Hope your well too chris

Take care xx

Hi Bigfeet

So good to read this. My husband in week 5 of radiotherapy to tonsils/lymph nodes and having a very tough time with swallowing, saliva, sore neck etc etc.

Thank you for your reassuring post!

B

Hi.

I'm recently diagnosed with the same. 

 I had my mdt meeting yesterday and treatment plans put in place just waiting for dates reckoning mid September. 

It's so good to hear of someone at the other end .

I'm an over thinker but once I know what I'm dealing with I think I deal with it in my own way.  My oh is completely opposite he deals with stuff as it happens so compliment each other well. 

I know it's going to be brutal but can't wait to get started and battle through dealing my way with whatever side effects I get and knowing he's there to lean on

Hi Bigfeet,

Good to hear you're doing well and enjoyed your holiday in Greece. I'm interested to know what the saliva spray you use is called. My  dry mouth seems to have got worse and now affects me during the day when I only had it night. It's so annoying having to rinse my mouth frequently which is fine at home but can get caught out when out and about.

Thanks in advance for any recommendations.

Little-fi

Hi Little-fi

Not Bigfeet but maybe what I use might help.

My standby saliva sub is AS Saliva Orthana which I get on prescription but you can buy online or at your pharmacy

I super from a very dry throat as well as limited saliva. My uvula has been fried to a stump and this little wiggly thing, when it's healthy, provides a lot of saliva to lubricate the throat.

Sipping water simply flushes the saliva out of my mouth so when I need a drink i try to get water down my throat without sloshing it around my mouth. Chewing gum makes my saliva flow so I am constantly chewing

At night I put in two xylimelts, spray into my mouth with the saliva sub and rub some OraCoat Xyligel around my gums under my lips.

This sees me through the night, largely.

I discovered Xyligel on the OraCoat website looking at OraNurse toothpaste, which is the only one I can use

It's suppose to remineralise teeth while you sleep, has a buffered pH of 7.4, and stimulates saliva

This loss of saliva is a real bugbear. people don't understand how debilitating it is.

Following Radioactive Raz's lead I am trying Acupuncture to stimulate my salivary glands

I hope this might give you some options to pursue

Hi Little Fi 

This is Hazel aka RadioactiveRaz I too-still have.  Dry mouth, at night xymelts are my go get stuff get online at the mouth ulcer company I use 1/2 of one and rub bio tene gel on gums before bed .

I have had 2 sessions of acupuncture and to be honest I have notice a small difference whether psychological or not I have 2 more booked then will re view  them I am having to pay private  as my hospital won’t sanction it .

i too use a s saliva spray nit pleasant but does work .

i too have a stump where my u U.K. a was , onky found that out this last week it produced at lot of thin saliva hence my dry throat when talking for longer than a minute.

my blog is www.radioactiveraz.wordpress.com

 Best wishes

Hazel

This is very reassuring- my husband  finished 6 weeks radiotherapy & chemotherapy for neck tumours  on a Friday 16 August - he has coped well during treatment but on the first day after it ended he sorted of “crashed” and spent a whole week in bed sleeping/dosing - it was like someone with ‘flu.  However yesterday & today he has been up all day reading, watching TV & even emptied the dishwasher this morning. He is only on soup & Ensure (4 a day) & I keep trying to tempt him with things but nothing works at the moment. Additionally his neck which looks like something out of a horror film is healing so I am hoping the inside is doing equally well. Your post gives us good hope for some semblance of normality on the not too distant future. Thank you & good luck.