Hello everyone

I'll bet I could beat him in a burping contest! Lol   Mine's so bad I've had it as my username across all my social media accounts!! Hehehe

tjasai, one thing we all agreed on, if you are offered a food peg, there are various types, its a massive game changer, i fought against it for a while until my weight went really low, now getting the calories in, all meds in liquid form, so easy to get in, but again the team you will be assigned will discuss all this with you, take care, and dont be afraid to ask anything, all of us are newbies to this ass of a cancer!! but have various experiences and different levels on this journey, take care x

Thankyou xx

Hello lovely, so very sorry to hear of your husbands diagnosis. And to everyone here having to join this forum. Absolutely devastating news. Kind of in the same boat found a tumour in my partners oesophagus by chance on a lung CT in October. It’s since been confirmed by endoscopy to be 10cm. He’s since had another full body CT and MRI and awaiting referral to another hospital for an ultrasound endoscopy. Nothing officially diagnosed. I’m a nurse myself and I can’t tell you how much reading and googling I’ve done and it’s made me so much worse. The wait is agony. I feel your terror and wasn’t coping at all well some weeks back I sought some counselling and went to the GP so I can be a better support for him and our daughter who’s 10. Taking each day as it comes at the moment but I feel exactly like you about putting up a tree and trying to carry on as normal is so difficult. I feel like I’ve such a defeatist attitude already and can’t see the wood for the trees. What I do know is this group is wonderful support and makes you feel a little less lonely. There are also some positive stories to be found and lots of love to share. I will be praying for the most positive outcome for your husband and your family and sending you strength in abundance. Always a listening ear here if you need one. Sending all the positivity in the world. 

claire Xx

Nice to meet you , in all honesty , hearing other people's stories is so comforting . I'm really sorry to hear of your husband's tumour. 
I can sort of  keep my stuff together when im with him as he's taking the news quite badly: He went on google for the first time yesterday . Seeing him worried and with tears in his eyes is heart breaking . It's when I see people we know or im alone where I just get manic. I will see the doctor if I feel I must.  Our children are 15,12 and 5.  Real mixed bag.

We have a ct scan at 2pm today.

 Wishing you all the best 

xx

All the best for the CT scan today. One step closer to getting some answers and getting started on some sort of treatment plan…

I completely understand where you’re coming from. He’s home from work currently as he works away and I’m more settled when I’m around him. He just isn’t speaking about it all so I don’t prompt to I guess it’s way if that’s how he copes best. Ive took some sick leave as I feel like being at work is just triggering me and I’m tearful all the time no good to my patients at all. Around others though I was also very manic and my mum took me to the GP. Counselling is helping he’s learning me some coping techniques to distract my mind when I feel manic. I’m terrified for seeing him tearful and scared so just trying to get myself together to be his best support for what’s to come. He had a Ct in Oct then a full body CT 2 weeks ago then an MRI Friday gone the letter for MRI came with no explanation so my mind has been wandering all weekend. Hope you get some answers from CT quickly and they quickly get your husband on a treatment plan. I will be thinking of you guys all the time. Praying hard for you. Much love. 

I pray you get answers soon x

Hi Claire,

1. I’m so so sorry to hear that you and your partner find yourselves in this situation. Not talking about it is probably just his way of trying to process things. After my diagnosis (Oct ‘23) I used to take myself out for long walks just to think things through (and sometimes cry a little if I’m honest) My wife was my support team and I couldn’t have made it through the last year without her. She came to every appointment with me to make sure we asked all the questions we had thought of and helped me to remember all the answers. She drove me up and down to hospital so many times for appointments, blood tests, chemotherapy, etc. She fretted for the 10hrs I was in surgery for and visited me twice a day for the 16 days in hospital afterwards. She was there if I wanted to talk but also to keep things as ‘normal’ as possible while also taking care of all the things I just didn’t have the strength or energy for. Your partner will need you for all of the above. It’ll help him immeasurably but also give you a focus as you navigate your way through whatever lies ahead. So get that Christmas tree up and make this Christmas as good as it can be. Best wishes to you both. CB

Hi Claire. I just wanted to endorse the message you got from Cool Blue. The pressure is often far more on the partner than on the patient in this situation. I know my wife was stressed out for the year of my treatment and surgery. The wait through the diagnostic stages of CT and PET scans which all takes about 3 weeks is I feel the worst of all. My very best wishes to you both and I do hope things turn out well.