Hi Everyone, I was recently diagnosed with cT3N1M0 adenocarcinoma GOJ cancer and would love to hear from you.

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Hi, great to be here ! 

I have had months of serious asthma and breathing problems this year and was hospitalised as a result, but nothing to suggest oesophageal cancer. I was then diagnosed with a large pulmonary embolism (blood clot between my heart and lungs) as the source which was then treated.

During investigation of this, a CT scan identified irregularities with my oesophagus and a subsequent endoscopy revealed a malignant tumour (diagnosed as oesophageal cancer cT3N1M0, adenocarcinoma tumour at GOJ and lymph node). Initially, I had few symptoms (no evident reflux, etc), however I have developed dysphagia, nausea and fatigue, which are worsening.

This month, I commence 4x cycles of combined chemotherapy (FLOT), followed by a full Oesophago - Gastrectomy and another 4x cycles of adjuvant FLOT to eliminate any residual cells.

I would love to hear from you and learn from your experiences and I am very happy to help anyone else I can, although I am very much a novice at this :-)

I would really appreciate if you could share your top 3 pieces of advice for me ? Thanks so much in advance, speak soon !

  • Honestly,  I remember being so very anxious all the time. I kept my eye on the prize (raiding my son) and took it step by step. 

    We're here for you. There is a wealth of knowledge and experience on this forum that really helped me.

    Take care