Hello
I am new to the group and site. My father, 75, was diagnoised with esoph. cancer. He is being treated at an excellent facility, Moffit Cancer Center in FL. He has undergone intensive chemo and radiation with a good effect on decreasing the size of the tumors. We are now in the process of determining if he is a good candiate for surgery. His most recent PET showed some fluid around the right lung which will be evaluated in late June. His radiation oncologist seems to think the cancer has not spread rather it may be a lung issues as he is a long term - 60 years smoker. The struggle here is my father is doing the treatments and seems to want to get better but he is very depressed, withdrawn from us, feels like none of his family is really supporting him, and he is still smoking some. We are all stressed to the max and do understand that it is diffcult to understand since we are not in a similar place. Maybe if he could speak with someone that has had this disease that is of simiar age and could help to support him and lift him up, share experiences, give him hope that he can still live. We are of the opinion that he is still smoking and depressed becuase he thinks he is too old to recovery or to go through the surgery. However the docotors say it could be possible and we want so much for him to know that he is not alone. Anyone out there that can relate? Anyone of his age that has gone through the surgery successfully?
I feel desperate for help, sad, and alone. I know it is his life but there must be more.
Welcome to the group. I am really sorry about your father. You can read our profiles by clicking on our photos - you could tell your dad about some of the successes on this site.
When I was up for the operation I asked the surgeon if I could contact one of his former patients who had come through the operation and I was called by a 75-year old woman who was doing really well. I honestly think the best thing for your dad would be to ask the GI nurse or surgeon for a name of one of his paitents whom your father could contact. It is better to speak to someone near you and most patients are willing to talk and help others - like the people on this site.
I understand his reticence and that is why he must talk to the doctors and other patients near by. It is a pity he is still smoking but being worried as he must be it is understandable. The surgeon will only do the operation if he thinks your father stands a good chance of pulling through. The operation is too big and life changing for them to do it if they don't think it is feasible. So tell him to trust the surgeon and his team's opinion. I also suggest his calling the OPA.org (oesophageal patient's association) where they give excellent advice. If he could call them it would help him. He can also check out the thread started by Crystal on ‘Surviving Oesophageal Cancer’, so when you’ve got time you may want to flip through it:
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good luck with all this and let us know what he and his team decide to do.
Take care,
Judy
Hi,
Another group you may also ask is
http://www.lsoft.com/scripts/wl.exe?SL1=EC-GROUP&H=LISTSERV.ACOR.ORG
As this is an american group rather than british you may get some more relavant help on where and how to get help.
John
Hi Dadsdaughter,
There is another site that you might want to look at, it is an American site with lots of people who have been in the same situation as your dad, have a look it may be of some help.
http://www.eccafe.org/sto/index.html
Best regards
Tony
Hi
Although a bit younger than your dad, I can identify with his emotions. I have suffered bouts of depression and hopelessness and isolating myself because I did not think family or friends could identify with how I felt because after all, ...'I WAS THE OPNE WITH THE CANCER'. I confess to resenting friends and relatives for not having cancer. It is such a roller coaster. Most cancer centres have patient liasion centres that may be able to put you in touch with services that can help to try and deal with your dads emotional needs.
This site has been a huge support for me and , of course you can phone the macmillan services and get more personal advice.
It is good that you are here and, I promise, people get through this and, in all honesty if you had told me I would be here a year later I doubt I would have believed you but I am here and doing well.
I have had both esoph and stomach cancer and survived the surgery. I was up and walking the next day but 1 year after my surgery im still having a few problems but nothing I cant cope with. If you or you father want to discus anything about the surgery or recovery then feel free to contact me.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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