Husband newly diagnosed

FormerMember
FormerMember
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Hi, this is my first post. My husband was diagnosed with stage 3 oesophageal cancer a few weeks ago. His ct scans looked clear and they told us it was localised as far as they could see. He couldn't have surgery as he has heart problems and other health issues so they were going to do chemoradiotherapy. Unfortunately after a PET scan it has spread to lymph node near his collarbone so they can't do that now. They say it's not curable but hopefully treatable. He's having a stent fitted today so hopefully will help with the eating. He's only 55 and a non smoker so quite young for this type of cancer according to the macmillan nurse. He is so positive and I'm trying to be the same for him. And the things I've read on this forum have given me some hope. 

  • Afternoon Cairen, welcome to the group I'm really sorry to hear your news, it is a lot to come to terms with, but a positive mental attitude is key going forward. Living with cancer is still living and it's important to make the most of every day. I was diagnosed with stage 4 with tumors in my osophagus and lymthnode near my kidney. I was also told at the time that I was incurable, but things have changed and I have a potential path out of this. I am a lot younger though so more likely to react well to treatment, but others from this forum have reached out to me who were older and also stage 4 who have had there fortunes change. This is obviously not case for everyone, but never give up hope and keep fighting. This is a great community who are hear to help, don't hesitate to ask questions in here for what to expect and tips along your journey as we are all here to help.

  • FormerMember
    FormerMember in reply to Vinny1986

    Thank you so much for your reply and I'm.so.glad.there seems to be a light at the end of the tunnel for you. Hubby is a bit of a technophobe so that's why I'm here not him but I read him your messagGrin He's just come home from having 2 stents put in and he says he can feel a difference already Grin

  • Hi Cairen, welcome to the group, Vinny has put you in the picture, I have come onto your post as I am a lot older 71, this is my second bout of battling Cancer the first on comparison to this one was a lot easier an operation to remove my voicebox and get over that and readapt to using a voice prothesis, this one is chemo and radiotherapy and it isn't easy, I am in my  4th week of 5 and it does wear as it goes on but don't let it get either of you down which it may well do about half way, ask your Husband to always speak with anyone and everyone if he has the slightest problem and as you seem to be supporting him go to the clinic days with him as he may not remember what they say or forget something, they should have given or will give him a book My Cancer Traetment Journal to record any reactions etc with each chemo session.

    What is the draining part is the daily grind of having to go, I still work and if I was in the office it wouldn't bother me but this for some reason is different.

    Hope all starts well and you know where we all are

    Take Care

    Tony

    Community Champion Badge

    We will move mountains to help people with cancer live life as fully as they can.
    We'll do whatever it takes. For information, support or just someone to talk to,

    call 0808 808 00 00 or visit www.macmillan.org.uk

    Onwards and UpwardsWink Laryngectomy and OC survivor 

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  • FormerMember
    FormerMember in reply to Kasvin

    Hi Tony, thank you so much for the information and I hope everything goes well for you. We do have the cancer treatment book, I've started filling it in already. I will definitely be at every appointment with him, he has a head like a seive already lol. I was his full time carer before the cancer diagnosis so I'm used to taking notes. We aren't sure of his treatment path yet only that they said it would likely be palliative chemotherapy. He has so many other health issues to contend with which is a worry but we are definitely going into it with positivity. Many thanks again for the support x

  • Hi Cairen 

    You have already had some lovely replies, but I just wanted to drop by and say hello. 

    My Husband was diagnosed in May 2020, and today although still having treatment he is doing really well. 

    This is a great/friendly forum, and it has a mountain of information within it, but there are also some other forums, like the Family and Friends  Forum which may offer you an alternative area of support, it is a place where those on the sidelines can share their experiences also. 

    I am in in and out of the forum and have had some fantastic support over the past 22 months... and if you have any questions at all, feel free to ask. 

    Wishing you both the very best

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • FormerMember
    FormerMember in reply to Lowedal

    Thank you for your lovely reply, I'm so glad your husband is doing well. I'll have a look at the friends and family forum.

    Many thanks

    Cairen x

  • Hi Cairen my husband was diagnosed two months ago whilst we were on holiday. Not offered surgery but just started chemotherapy. I found this support forum really informative in ways I can help support him. It's a lot to come to terms but good to know there's somewhere we can come to for advice