Hi everyone,
I have a particular question about chemo, and we'd love some insight from someone that has gone through what my dad is about to deal with. Short version of the story is very similar to so many I think - late stage diagnosis, and we are not on a curative pathway. Dad has a NJ feeding tube fitted, and is due to start chemo (EOX) very soon.
We are a bit worried about how the feeding tube will manage the chemo, however. Our background is that he's had lots of problems with partial blockages which are incredibly difficult to deal with - frequently we can get water to go down, but the pump won't push feed down. Often we are able to use the pump 24 hours after the original blockage, but it's not great for routine and causing huge amounts of stress with covid etc. No chance of getting a replacement tube in the near future.
We wonder whether particulate matter build-up from his dissolvable paracetamol is causing the problem. As dad will be having to take his capecitabine dissolved in water down the tube, we would just like to see if anyone else on here has dealt with a similar problem, how easy they found the capecitabine to dissolve, and any other tips/insights that anyone could give. We are receiving mixed responses to our questions, but would really appreciate first hand experience!
Thanks very much
Hello bracken28,
I noticed that your post has so far gone unanswered, I am sorry about that. It must be terribly difficult to get mixed responses with regards to your questions, I however do not have any experience of the current conditions that your Dad is going through, other than my husband being diagnosed with oesophageal cancer, palliative care, no feeding tube but currently on FLOT and Herceptin. This week is the first fortnight that he has not received any treatment since May 22nd (a rest break for new year)
I don't feel that I am able to offer you any first hand experience but I am sure there will be others who will be along soon who may have had some similarities in their treatment.
Wishing your Dad every success with the upcoming treatment, and hoping that the feeding tube issues will soon be resolved.
Lowe'
Hi John
Great of you to share part of your journey here, rough as the journey can be, it is really important that we can read others experiences, good and bad, (well, for me it is anyway 
) My husband has not been offered radiotherapy, he is on chemo and about to go on to maintenance only treatment, his prognosis (when last updated) was not great, but he is doing really well and hopefully he can beat said prognosis by many years.
I hope that you are correct in so much as "you had" I hope you are recovering well and you will be willing to share more of your journey here for other. (maybe consider updating your profile....for nosey people like me, this is a great source of information 
)
Keep up the good work and a massive Well Done to your Wife.
Lowe'
