Inoperable T4

Hi  and a very warm welcome to the online community

I'm very sorry to read that you've been diagnosed with oesophageal cancer and that it's taken a while to get to the point where treatment is beginning.

Although I don't have any experience with this type of cancer I noticed that your post hadn't had any responses and by replying to you it will 'bump' your post back to the top of the discussions list where it'll be more easily spotted.

When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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Hi  Artymar  this time last year I had been diagnosed with esophageal cancer on the junction with the stomach stage 4.  I had chemo and 11  hour op,I never thought I would be here today, But here i am it has taken time but nearly back to normal.I have had 2 stretches' of my new esophagas and I am clear of cancer.  Hope you have the same results  (68 years of age)

Thank you for your reply. Still trying to work out how this site works. I am grateful for your advice and support latchbrook! 

No problem  

If you need any help finding your way around just give me a shout

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Alfiesmum 1. unfortunately my consultant has informed me that mine is inoperable. Treatable, radiotherapy and 2 chemo sessions and I’m keeping everything crossed. Think I need to ask more questions. Thankyou for your reply and support. 

Hello Artymar, I think you definitely need to ask more questions, have you been told why an operation is not possible?   My husband was diagnosed as inoperable in 2008 and, following chemo and our efforts, he had surgery less than a year later and is now fully recovered (he is also 68). It’s so important to understand any decisions that are being made so you want to be fully in the picture. Have you been in touch with the Oesophageal Patients Association?  They helped us a lot with information and support and they could give us unbiased recommendations due to their experience and knowledge. Best wishes and positive thoughts.

Hello thanks for sharing your story. My mum has recently been diagnosed she has 2 small tumours on the scan it hasn’t spread. She is waiting now to get pet scan. She can only eat soup at the moment. Your comment has given me hope. I’m still in shock and constantly thinking the worst as I don’t know enough about this kind of cancer. My mum is 63. 

Hi Bella2022

I am sorry to read that your Mum was recently diagnosed, I remember too well what it felt like when I was told that my Husband had been diagnosed, it is not an easy path to follow at first and I hope you find support here, and also if Mum would also like to join us she may find her own support here too. 

My Husband was diagnosed nearly two years ago, he was extremly ill, and not given a very good prognosis, but amazingly he has reacted really well to the treatments and he is carrying out much of his old life, with a few changes, like healthier eating, less stress and a better understanding of the value of what we have. 

If you take a look at the Family and Friends forum also, you will find others who have loved ones going through similar experiences and you may find additional support there. 

If you have any questions, please do not hesitate to ask. 

Lowe'