Lack of new posts

I agree 

Hello,

Yes, I think it is probably the difficulties that people are having with the site;  certainly if my experiences are common.  It's a bit of a paradox that for many of us this website is a total godsend, and when we use it it really is because we have a need.  All I can say is that I got in touch with the Community Help Line and they got me going again.  But I was really getting frustrated and, yes, rather angry.  I don't know why they thought they were improving things, and it certainly has not been tested properly.

Back to the illness:  I'm afraid that since my last post here I have found myself more on the "Incurable" group.  I am still having problems getting the reality of my future into my head - I think it is because i simply have virtually no symptoms yet.   I'm sure I will be back here when I need advice about swallowing difficulties, which I assume is how the illness will initially make itself felt? 

I wonder if other people here would tell me about their way through the illness, if they have been unsuitable for surgery and the chemo and radio therapy had run their course without benefit?  I am just carrying on as well I can, simply waiting for the sword of Damocles to fall when the symptoms make themselves felt.  I do feel somewhat abandoned by the cancer treatment people.  When I was having the chemo and radio (daily) the nurses and technicians were just SO wonderful and caring, now there is nothing.   I am thinking about how far I will got with dilation and stent-fitting and even a tube - when it comes to it.  I suppose it just depends how desperate I'll get.  I'm quite old, 73, so I suppose I should be thankful for what I've had.

No doubt there are people reading this who are thinking, rightly, that I'm blinking lucky and should be enjoying my symptom-free life while I can.

Back to the Website problems:    I think there should be a great big banner displayed on the very top level of the Macmillan Website saying "Those who are having difficulties logging on and using the website, please contact ->   email & phone & link"   -  that way they would catch everyone?

Well done for starting this thread Frank.

And i totally agree. 

What I miss most is seeing the date and time of posts and the date order being in posts rather than discussion topics. 

Unfortunately one has to learn (the hard way) that changing a website usually reduces website traffic (page impressions) unless you can incentivize users to use a new site.

Hi there,

I hope you don’t mind me posting here, my name is Rachel and I work as part of the Community team here at Macmillan.

I’m sorry to hear that you have been finding the new site difficult to navigate, we have applied some upgrades to the Online Community recently and any and all changes to the Community were based on members’ feedback. Macmillan is committed to providing the best possible platform for people affected by cancer to access support online.

I wanted to let you know that if you have any questions about navigating the new site, you might find our updated ‘Help section’ and new site ‘FAQs’ useful. We also have a new ‘Help group’ where members can post any questions and a member of the team will get back in touch with some help and support.

I also hope it reassures you to know that the upgrade has been part of a large project, undertaken over many months and following extensive research. We’ve had a great team behind us all the way and the Community team, along with members of the site, spent many hours testing a development version across all devices with existing bugs resolved prior to going live.

We know that sometimes these changes can cause issues, but long term they will help to provide a more stable and better functioning site for everyone.

We are by no means finished with updating and improving the Online Community, so your feedback is welcome in helping us to shape the site for a better future. To contact our dedicated Feedback team, please fill in this online form.

If you have any questions about the above, or if you are continuing to experience any technical problems, please don’t hesitate to get back in touch with the Community team by emailing community@macmillan.org.uk.

The Community team aims to support all our members as best we can, so if there is anything we can do to help – please do let us know.

Kindest regards,

Rachel
Macmillan’s Community team

Hugely difficult to login.  Password reset is a nightmare.  It took me an hour.

Hi fortiemac, sorry to hear that you can no longer get treatment. As I have said to my wife, when all else fails it's time to try the magic beans. As in whatever you feel like trying as long as it's unlikely to make you worse. I agree with you that there should have been further tests before going live with the new website. Please do keep posting here. Good luck and kind regards Frank.

Hi Frank 

Apologies if a duplicated message . 

Firstly , I hope you , Brent , Anon 613 and the rest of the guys/girls are all safe and well.

This new site in my humble opinion is difficult to use/ navigate and offers no benefit that I can see ??

Just had my 3 year check up (well will be 3 years post Ivor Lewis next month/ T3N2M0 (original diagnosis) and feeling fitter than I have in years - ALL Clear :) 

Take Care all - stay Safe

All the best 

Pete 

Hi Pete,

Wonderful news!!

My very best wishes to you and your family X

Congratulations Pete. Keep going.

All well and safe here!
It’s 2,379 days since my Ivor Lewis. It seems like decades ago. That’s a good thing I guess.but it could be that my memory is going - I remember so little of it now; I did keep a daily journal for ages but rarely feel the need to open it theses days.

Where has my automatic signature gone?