My wife had an oesophagectomy about six weeks ago. I am delighted to say that things went very well, and continue to do so: I am profoundly grateful to all the medical staff who have helped us.
I now have a couple of questions related to the recovery period. These are very minor matters in the overall scheme of things, and I would have asked them of the medical staff directly - but, since the coronavirus outbreak is now causing huge disruption, additional risks, and the necessity for cancelled appointments, I thought I'd pose them here in order to see what other people's experience has been. So:
1. Since the operation, my wife has developed a persistent dry cough, which seems to be aggravated by either eating or speaking. Have others suffered from this post-operatively? Can it be expected to go away? Is there any way to ameliorate it?
2. My wife is still taking small amounts of nutrition overnight via a jenunostomy. We hope and expect that such feeding will be completely phased out within a couple more weeks, but I have been wondering:
a. For how long after this operation have other people used a jejunostomy for feeding?
b. For how long after it was no longer needed was the tube left in place, 'just in case'?
c. Is final removal of the tube something which requires a clinic appointment of some kind, or is it a relatively minor matter which could be safely dealt with by a nurse on a home visit (or even, thinking about it, by ourselves)? In asking that, I am simply keen to avoid the need to visit hospitals or clinics during the period of the current crisis.
Thanks in advance for any suggestions or personal anecdotes!
Re tube removal I had mine for over 3 months finally came of feed and once settled onto solid food it was removed 3 weeks ago... due to virus concerns at hospital a nurse called at my home to remove it. It took all of 30 seconds to do and I felt nothing, am eating well and gaining weight.
Stew,
Thanks for the reply - and pleased to hear that you are progressing well.
Two months after her operation, my wife has now totally come off liquid food via the jejunostomy so, if things continue to go okay and her weight remains stable for the next few weeks, I hope that the tube can then be removed. Interesting to hear that a nurse called you on at home to do that removal, rather than have you make a visit to the hospital - that sounds like a sensible arrangement given the current circumstances.
All the best to you, and thanks.
Stew,
Thanks very much both for that reply, and for that offer.
In fact, I am happy to report that my wife is now doing very well: her jejunostomy was removed (at the hospital) a couple of months ago; she is now back to eating pretty normally; and her cough is much improved. So I really think that things have gone about as well as they could have here, and I am extremely grateful to everybody involved.
If we ourselves have further issues or questions, I'll post back to this forum; otherwise, I intend to keep an eye on the forum so that I can chip in with thoughts on our own experience, where that might be helpful to others.
Thanks again.
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