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My husband aged 47 has just been diagnosed. For the past 6 months he's been back and forth with stomach pain, difficulty swallowing, feeling sick, excessive phelgm and weight loss. Our gp diagnosed work related stress, then acid reflux then non ulcer dyspepsia, he only said he'd book an endoscopy as he'd lost a bit of weight (over 2 stone in a few months) didn't meet the 2 week criteria so no rush for endoscopy.

A week later on 14th Feb, he collapsed and when he came round he started vomiting dark red old blood, couldn't stop. Rushed to A&E and they diagnosed a stomach ulcer. He stayed in hospital for a week, had ct scan, endoscopy and another ct scan. Doctor came round that week to say ct scan showed a tumour, endoscopy confirmed it.

Had pet scan, all showing its contained with 2 nodes very close by. Had staging laparoscopy Monday and surgeon came round in recovery to say it's all looking good, so he's able to have surgery. 

So next Tuesday he begins Flot chemo for 4 sessions over 8 weeks, before surgery then more chemo. 

He used to be fit and ran and cycled regularly and had a good appetite, my question is how can I get him to eat and exercise as much as possible, when he's struggling to eat much and manages a 20 minute walk before he's had enough.  To begin with mentally he was in a great place but I think he's beginning to think about what's ahead and although he says he's fine I can tell he's not, he said he will be OK in a day or two and that the laparoscopy just knocked him back. I just want him to be as fit as possible to deal with what's ahead of him, so if anyone has any advice, it would be gratefully received, he's also not drinking munch either. 

  • FormerMember
    FormerMember

    Hi Think, sorry to hear about your husband. Fatty foods help to put the weight on and I know about the weight loss, I lost 5 stones prior to surgery. I had the Ivor Lewis surgery in October 2016 and I have now gained all the weight lost. I was 57 when I had the surgery and had been a smoker for about 45 years and didn't do any exercise, DIY and sawing logs was my workout. If he doesn't feel energetic enough for exercise definitely doing deep breathing exercises and walking helps. Good luck and kind regards Frank.

  • Hello Tink

    My husband went through this in 2008 after a very bleak prognosis - he’s fine now and enjoying life thankfully.  He had 8 cycles of ECX chemo and he had a full oesophagectomy in 2009.  

    He couldn’t manage long walks but he wore a path in the garden doing ‘laps’, some days he just did a few and other days he marched round for ages.  I used full fat everything when I cooked/made smoothies and I soon realised that meals were hit and miss for taste.

    Your husband could still be in shock, such a lot has happened in a short time and this affects us all in different ways, it might take a while for his appetite to kick in again.  It’s really positive that the consultant has approved surgery so focus on that, the fact that he was so fit and healthy before this is a huge help.  Hopefully things will settle down soon and, once chemo starts, you will feel that there is light at the end of the tunnel.

    All positive thoughts coming your way.

    J x