Chemotherapy and unbalanced

FormerMember
FormerMember
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Hello All

Just thought I would drop by again.  It's been a year now since all my treatment finished but amongst my post op and treatment,   I found that I was getting dizziness and this has been going on since Jan 19.    Sorted out my lactose intolerance and now doing OK on that front. 

To recap, I had Stage 3 N0M0 gullet and the Ivor Lewis Op in Sept 18.   Recovered from that but then got dizziness which was intermittent and wouldn't go away despite antibiotics, betahisatime and countless visits to the docs.

Was then referred to a specialist who tested me for vertigo as well as other things (which is was none of )  -  conclusion was that the chemoradiotherapy that I had has affected my balance.   I had never heard of this before in my extensive reading of cancer so if there is anybody out there suffering with the same,  they give you exercises to do to strengthen your balance and co-ordination.

He made me do some weird positions with my head off the edge of the bed and rise quickly to sitting on the bed,  and seeing if I could stand still with my eyes closed.   Strangely , I think he may have reset my ears somehow as I feel a bit better today !!  

Anyway, it's just another thing to deal with.   One year on,  every day is do-able.  Yeah I take a combination of drugs for gastric stuff to do with the cancer,  as well as  arthritis, osteoporosis and other things including the morphine still but it's not a horrible life.   As Stephen Hawkings said "Where there is life,  there is hope".  My hope is that I am here a few more years.  Always have that hope and try to think positive.   Take care all. xx

  • FormerMember
    FormerMember

    Morning 

    Pleased to read you are 'getting on' It takes a long while to recover from the barrage of surgery and meds though :-/

    The dizziness you mention is quite common as a lot of the meds including some chemo drugs can bring on vertigo or labrynthitis etc

    It comes under the umbrella term of BPPV and the head movements you were given is called the Epley Manoeuvre.

    My wife had this just as she finished her chemo courses for breast cancer.

    For anyone interested there is this NHS Leaflet about it.

    https://community.macmillan.org.uk/cfs-file/__key/communityserver-discussions-components-files/66/Benign-Paroxysmal-Positional-Vertigo-_2D00_-BPPV.pdf

    Take care, G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks for the info on it,  if only somebody would have told me months ago !

  • FormerMember
    FormerMember in reply to FormerMember

    So true

    Would have been so much easier knowing what to look out for in advance :-/

    G n' J

  • Suggest you look up Epley manoeuvre for dizziness caused by benign paroxysmal positional vertigo (BPPV). BPPV is caused by a problem with the inner ear. Calcium crystals called canaliths can end up in the semicircular canals. It is simple and works.

    The BPPV was probably nothing to do with the surgery or chemo, it just happens sometimes!

    Counting the days, making every day count.

    Brent

  • FormerMember
    FormerMember in reply to BrentS

    All the information is included in the above BPPV.pdf link above

    J's GP said the most likely cause was Docetaxel (Taxotere) chemo.

    G n' J