Hi,
This is my first time posting here, I am not very good with writing things down and expressing my feelings, but right now I am feeling lost, alone, helpless and needing some kind of comfort, advice, and hope. If anyone can offer any words, I would be so grateful.
My dad is 72 and was diagnosed with Osphageal cancer in 2022 with squamous cells. At the point we had all the hope for a curative treatment, he underwent chemotherapy and radiotheraoy and then eventually Ivor Lewis. He was a little hesitant at first with the surgery but he did so well, and recovered with all the hope for the future.
Then a few months ago, he started to loose weight quite rapdily, lost 6kg, loss of apetite and some of the symptoms he previously had before started coming back such as feeling discomfort when eating. They did an endoscopy, and all seemed fine. Then he got omitted to hospital due to a suspected infection/ pneumonia. They found liquid in his chest which they took for testing. His CT scans came back clear from cancer and xrays were suggesting more towards penumonia which was a relief.
He got discharged from hospital with hope, however a few days ago, unsuspectedly the biopsy came back and we all got the dreaded news that his cancer is back, it is advanced and it is no longer localised, the flluid show cancer cells of the ospheageal cancer which means that it is a recurrence. Our surgeon had said that curative treatment is no longer avaialble and my dad is being refereed to see if they are any options to help prolong his time here, they mentioned more chemotheapy or immunotherapy if the cancer type allows it. At the moment we are just waiting for his appointment with the specialst. Finding it so difficult to see any light or hope when we heard life expectancy could just be a few months, I cannot help but spiral now and feel like my world is crumbling beneath me, so I can't even image how my poor dad feels. If anyone has a similar story, advice on treatments, words of encouragement, please share, I would appreciate it so much, I need all the help at the moment to stay strong for my dad.
Thank you
From my experience when my husband was first diagnosed and reading other posts on this forum, the oncologist and other specialists seem to give worst case scenarios. This is based on statistics though and don't take into account each individual's circumstances, including treatment and response to treatment. I hope your Dad is one of the lucky ones.
Sending love xxx
LozzaT thank you so much for replying, yes I really hope my dad is one of the lucky ones too..its excrutitating waiting to hear if there are any options and treatments, hes quite weak with everything hes been through, so I am just so terrified.
Just read your story and profile, how are things going with you and your husband? Hope you and your husband and family are making some lovely memories together xxx
Having had no chemo since 18th December, the side effects have gradually alleviated. The sore mouth, raw nostrils and fatigue continue. However, we've just had a fantastic week in the French Alps with our girls and the bf of the younger one. His fitness puts us all to shame but his enthusiasm is infectious. It was so lovely, especially when we thought we'd never actually get away together again.
Rod is 64 next month. He has been on medication for high cholesterol and high blood pressure for about 5 years, slightly overweight but pretty active before he was diagnosed with OC. How old is your Dad?
Xxx
Hi lozzaT, I am glad you managed to get away together as a family, and his enthusiasm gave you the strength to have those moments of normality even if it’s just seconds, that’s so precious. Rod sounds like such an amazing husband and father and lucky to have you all during such a horrific difficult time. My dad is 72 and he’s had chemo and radiotherapy and surgery before which has weakened him so I fear that treatment will be limited. I am struggling even now to come to terms with it after hearing the news five days ago and waiting is excruciating, mentally not doing well x
We do feel very lucky, in spite of the cancer. It was an emotional rollercoaster for us until treatment got underway. So it's totally understandable that you're struggling, particularly after having supported your Dad through a previous cancer treatment.
We're all here for you on this forum, any time you want to offload.
Sending love x
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