Postponed Treatment

Sorry to hear about your setback hopefully he can get his chest cleared and get back to his road to recovery. 
good luck with the scan. 

Such a shame to read about your husband's treatment setback. Wishing him a speedy recovery in time for the rescheduled chemo. 

Sending love xxx

Did they mention that in the case of an infection you need to keep alert about possible sepsis? Bit of an obsession with me as that's what my husband died of. 

Hi Yes fully aware of sepsis.

I am so worried about the outcome this week, I fear that the tumour has grown again, really has gone backwards to what he can eat. Back to a liquid diet. He almost looks skeletal, takes my breath away when he walks into a room. Sleep is very erratic, even with sleeping tablets. Things playing on his mind I fear and doesn't want to upset me. It is so horrible seeing him like this, the tears are flowing as I type, I fear the fight has gone out of him   

I'm so sorry to read this. He sounds so brave. Sending love xxx

so sorry bikerbabe, damn those days where you feel that you have this, then straight back on your ass, its so hard trying not to worry your other half, when you guys know us better than we know ourselves, had a proper breakdown in the loo at the churchill mid chemo today, thank god the mask covered a lot of it, not even sure why i was crying.  not sure where you are based, but some people have caught up in person, as it feels like we know each other already.

i had to moisturise my radiotherapy area, and i have been covering up quite a bit, hubs came in and his face, spoke a thousand words, skin and bones tick!, no flippin manual for this, and i still feel a million percent that this type of cancer should have the coverage that was out there when i had breast cancer/masectomy last october, thank god for this forum x

and its so hard to have a not be brave day, knowing that it will effect the other half.  but you are entitled to those meltdowns, where ever they make take place xx sending love jules

Thankyou, we are in Somerset, I want to know , but also don't if that makes sense. Have good support from family and friends, always asking if I need anything then please ask, not sure what they want me to let them do?  I feel keeping busy helps me to have a normal moment and forget about it, until I see him and how he is disappearing in front of my eyes. The nights are the worse, I feel as if I am drowning, in the darkness. This form of cancer certainly needs to be mentioned more, along side all of the other hidden cancers. Cancer Uk doing there best, but I feel cancer is always one step ahead. 

god love you bikerbabe, wish i was nearer, know what you mean about the drowning, after zapping today, outside the churchill had a frank and honest conversation with hubs - ended in tears and a cuddle, felt close again, but there will be a bad day again.  its so hard this cancer, the not eating side puts you on your ass, and takes away so much, stupid things set me off, can i ask has any one else gone down the anti depressants route wether the person with cancer or the person living with them, think i need to reach out, but then its confirmation i need help, its so hard to accept, so many friends dont really understand what a nasty bstrd this type of cancer is, moves so quickly,  after the masectomy i finally wore my lop sided ness with pride, not now with the skin hanging off me, so glad its the season to cover up.

and i still get "you beat his once, you got this", well i didnt, its back and some days i flippin havent got this, hence poor hubs either gets silent treatment, stroppy wife, or tearful sobbing wife, seems we/i havent laughed in ages, got the 2025 calendar arrived, still sitting on the chair, maybe this weekend we can make a list of possible things to to in the next few weeks, after treatment, pre op, xmas, post op, said nothing will be set in stone, but at least we are looking forwards some how.

the 5 years they can give you thats mentioned, i said to hubs 60 months can still count down, sending love, and if you need that moment to let it all out, flippin do it, so many people that mean well have no idea god love them.  please keep reaching out, no matter what time of day, seeing our old consellor that helped with "what the hell just happened" after the breast cancer treatment stopped april 29th.

keep talking, sharing and posting luv jules xx

Well we had our visit yesterday, to say we were petrified would be an understatement. Our consultant is prepared for him to have another round of chemo, which will occur on Monday. From what she could see from the scan she doesn't feel it has grown, but will now the full outcome in a couple of weeks. As he has only had 1 and a bit lots of chemo, she has said it is too early to stop, and feels she wants to give us the best chance. Both shed a tear after seeing her, with utter relief. And we also heard that our insurance company has agreed our claim, so a very good day all around. Fingers crossed we manage to complete this next phase, as the first two were aborted part way through. I will have everything crossed.