Nodes growing after Radical Radiotherapy.

FormerMember
FormerMember
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Hello to everyone,

This question concerns my mother who is 83.

She underwent 20 doses of Radical Radiotherapy with the last dose on xmas eve 2020.

She had a PEG feeding tube fitted prior to the therapy.

Again, prior to treatment, she had a CT scan, a PET scan & an endoscopy.

A tumour was found in the upper oesophagus, very near the top.

We were told these were Squamous cells that were infected, & Radical Radiotherapy was the way to go.

But they also found nodules that were benign on the lungs.

Recently my mother had another Endoscopy with biopsies taken. The cells were clear of cancer & the tumour had disappeared.

Now it gets interesting & very worrying.

There was a 5 cm stricture at the base of the oesophagus that stopped the endoscope passing through.

So she had another CT contrast scan, & today we received news that these nodes had grown. 

Unfortunately I don't know how much larger the nodes are, but if they are growing it seems that there is a cancer on the lungs.

Our liaison at hospital would not divulge any more details, did she not want to give us this horrific news, & would she rather our oncologist tell us.

We are due to meet our oncologist next Tuesday. & we are both terrified at what he might say.

After a little research, I found that when the nodes are still growing that cancer is a high possibility.

This research told me that the cancer has a 40% probability of being malignant.

Has anyone had this diagnosis?

And what was the prognosis?

Is it down to palliative care for my mother?

Or are there ways that can fix this?

I really think she would turn down any major surgery, she stated that when the initial cancer was found.

Could she be looking at months, years, or is it down to the individual?

She does not want to be undergoing any operations or invasive techniques if this is terminal.

I would really like to know what options she has, & what to expect.

Thank you to everyone for reading my story about my mother.

I'd love to hear from people who recognise this content.

Regards,

Graeme.

  • FormerMember
    FormerMember in reply to FormerMember

    Morning Jackie,

    Yep, life can be cruel. I always waited inside with mask while mum had Radical Radiotherapy. And what I will never forget is the volume of patients having chemo/radiotherapy. All those poor people, hair loss, some so weak that they needed wheelchairs. And yet there were happy faces too. My point is that now there has to be a similar volume of newer patients. So many lives afflicted by cancer. I read an article & found that 50% of us are prone to cancer. That's horrendous. 

    I'm very grateful for the link provided & of course I will read all about it. Wouldn't it be wonderful for us & the many others if this SABR could give 10 years, that of course is my wish.

    Yes, a hospice can be used at anytime, they take some of the burden of care off you so you can get much needed rest. And aren't hospital just so clinically drab, 10 to a room, no privacy & nurses spread thinly so you don't get their full attention.

    Jackie, thank you again, I will keep in touch & whatever I find I will pass straight on for you & you dad.

    Be safe, be happy if possible, & find time to relax for your sake, it's very tiring to be constantly on the go.

    Talk soon Jackie.

    PS: Does your dad have a huge amount of mucus to cough up in the mornings, if so I have the answer.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Graeme

    hope you and your Mum are keeping okay. Sorry I haven’t been on I’ve been busy searching for information and trying to read as much as I possibly can.

    Yesterday I had upsetting news regarding a dear friend who has been diagnosed with advanced liver cancer. He has fluid collecting in his abdomen (ascites) and will have this drained on Friday and examined to see if there are any cancer cells. Sadly if there are he will be in a similar situation we find ourselves in whereby he will be offered palliative care only.

    I have spoken to an old school friend who believes diet can help enormously. Her uncle has way exceeded the doctors predicted life expectancy. She has recommended eating leafy green vegetables such as spinach, kale, sprouting broccoli and Swiss chard. A smoothie each day made from combination of blueberries, blackberries, raspberries and strawberries. Also having roasted unsalted almonds and walnuts for selenium. Apparently sugar feeds cancer cells so should be avoided. My research for tonight will be on Biobran/MGN-3 arabinoxylan compound which is meant to have good results.

    I also read that if you have use of a sauna this can be beneficial as can bathing in Epsom salts. I’m not sure where you are based but local to us we have a MS therapy centre who let cancer patients use their oxygen machines for a small charge. Some are of the opinion that this can help kill cancer cells.

    Vitamins C and D3 can help along with zinc and magnesium and my Dad has agreed there’s no harm in tryimg them and starts them in the morning!

    I think you get to a point where you are willing to try anything that offers a glimmer of hope but isn’t too radical. 

    Fortunately Dad hasn’t suffered too much with mucus so far however I will definitely be in touch if he develops this. 

    Hope you and your Mum have had chance to enjoy the lovely weather. Dad said he felt better for sitting out in the fresh air for a couple of hours this afternoon. 

    Look after yourself and your Mum and have an enjoyable weekend.

    Jackie

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Jackie,

    No need to apologise, I can fully appreciate how busy you are, it takes a good part of the day & you yourself need down time or you'll get exhaustion.

    I'm really very sorry that your friend has advanced liver cancer with fluid build up. I really really don't want to say this.

    They told my mother that if her cancer moves to the liver it tends to be agressive  & it can shorten her already limited life. But I will add that no 2 people are the same, so your friend may have better resistance. And let us pray (I'm not religious) that nothing lies beneath the abdomen's fluid retention. 

    I'm indebted to you for this diet & I'm going to try it. It makes so much sense as we all know how nutritious darker green veg is. Carrots are also good because they contain beta carotene's which are the best source of vitamin A.

    As an ex off road runner, I know all of these foods you mentioned are vital. But what I didn't realise is that sugar feeds cancer cells, so carbohydrates would also be a gamble, after all, carbs are full of sugar which in turn goes to fat when not exercising.

    You are correct once again, we will try anything for our loved ones. My uncle who passed away 12 years ago, well he tried Chinese medicines, talked to the people who can see into the future using a deck of cards, (or as I call them, fake prophets). The Chinese medicines were utter rubbish, just bags of seeds. You just don't know until you try & there are plenty of people willing to lighten your wallet.

    I'm thinking that a good multivitamin may cover all bases here, ones that include zinc & magnesium, & crucially, ones that give you 100% of your recommended daily intake.

    Just a quick mention here, Carboceisteine is a great anti mucus syrup if you ever need it. It's prescription only. But it certainly works well.

    As mum had the stent fitted Monday afternoon, she's been too tired to go outside, so I just ask her what she wants to do, after all I cannot feel her pains & other illnesses. I will always respect her wishes, right until "The Day".

    Thank you Jackie,

    I hope your friend gets good results, & thank you for this very important information too.

    Best wishes to you all,

    Graeme.