I am wondering if anyone has experienced Lomustine as a chemotherapy on its own rather than PCV.
my dad was diagnosed in December and had a large amount of the tumour removed followed by chemo (TMZ) and radio therapy. That site responded well but unfortunately lots of other tumours are now present in various different places within his brain. We were told the TMZ was not working and to try Lomustine. He is due his 2nd cycle 8th June. It seems that the Lomustine has really knocked him. He sleeps almost all day and is up for around 4 hours to have something to eat. He coped really well with the TMZ but I’m not sure if this is the Lomustine or the cancer itself that’s making non feel so exhausted. Me and my fiancé get married on July 17th so I am just wondering what lies ahead. I understand everyone is different but I have coped pretty well so far by researching and preparing myself for what is to come. I can’t really find that much in Lomustine alone. If anyone has any experience, good or bad. Please share I need to know. Also, to anyone reading this. You don’t have to stay strong all of the time... you are doing a great job!
