Is follicular lymphoma stage 4 classed as high risk by government.
I have it in both under arm and both groin glands.
I see the constant every 3 months as I am on a watch and wait.
Do I carry on working or do I isolate.
My husband has one kidney and has chronic kidney disease so is in isolation already
Hi yes, this is all very confusing and I would always recommend talking with your team (if you can) as every blood cancer case is individual and the following information may well be out of date, but the fact that you have FL and FL is an active type of NHL you most likely are in a high at risk category.
This Information from the government is all encompassing and is a good guide what to look out for and what you should or should not do and Macmillan have also provided some information and answered some key questions around cancer and coronavirus (COVID-19). This link takes you to the most up to date Bloodwise information about the Coronavirus.
This is also on the Government information "If you're at high risk, you will be contacted by the NHS by Sunday 29 March 2020. Do not contact your GP or healthcare team at this stage – wait to be contacted."
I was diagnosed in 1999 with a rare type of Skin NHL. I am now over 4 1/2 years post my last treatment and 3 1/2 years in remission. Just a few weeks back my team said “……you need to think that you have just come through all your treatment again and take exactly the same precautions as you did then........” so I am basically back into a three+ months isolation controlling everyone I come in contract with and where and what I do.
She also said ”……. once a blood cancer patient always a blood cancer patient"......... "All the treatment you have had has indeed had a long lasting effect on the effectiveness of your immune system even although your bloods are ok with a few at the lower limit range of acceptable, like any virus you are at risk but this one we don’t know how a post treatment patient will react - let’s be safe and not sorry”
This may not be much help for you - sorry..... but this virus can not be underestimated.
((Hugs)) from a distance.
