Just introducing myself to group ...high Ive been diagnosed with bulky B cell follicular lymphoma... I have large masses in my stomach area which effects my eating and breathing ... also bowel probl
s ... I have had one round of R chop and one round of O chop .. not tolerating chemo well as have to be admitted due to reacting to drug so it has to be stopped and started ... feeling a little bit a failure as things go wrong even veins blow .. and now getting a picc line in
Hi again and it is good that you have found the correct group.
No one going through chemo should feel a failure - your body is just not meant to go through this treatment but you have to do it.
You will find the treatment will work quickly and you will start to feel the difference.
As I said the effects you are having can be normal, a PICC Line will help a lot and a good number of us have had them and they are great and saves your veins.
It is very important to keep drinking water during and following treatment as this will help flush out the toxins in your system and protect your kidneys.
You may find the Fatigue will slowly get worse over the cycles but one simple way to overcome this is to keep some simple activity going - like short walks
You may have some Nausea but your team can overcome this but remember to tell them.
Its is very important to Avoiding Infections especially the first week following your treatment. Keep an eye on your temperature as this will often be a sign of an infection. If you have any concerns you should always call your team or the chemo line number you should have been given.
You also may need to watch what you are Eating and Neutropenia when you are going through chemo as your body will not fight food based problems.
As I said, it would be great if you try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.....like my one at Thehighlander
I am sure that you see this as a long journey but it is do-able and you do need to keep the eye on the goal.
As I said before I had a different type of NHL but I am sure that some of the FL folks will be along to give you some support.
We are around to help and please feel free to ask any questions as we will help as best as we can.
It’s so good to hear from you Sue.
The SCT journey can indeed be a rollercoaster with lots of twists and turns but it is so good to hear that you are doing well, getting on with life and that you are seeing the world.
Where does time go? Our four granddaughters are so big and when we see them it reminds us to do our best to enjoy life as much as possible as time is flying in.
Yes, still helping out on the Community but if I can help folks lighten the load then great.
Keep on keeping on - ((hugs))
