Hello All, I also have FNHL and have had both CET scans and MRI. I curently have what feels like half a tennis ball buried under my left armpit, most I expect as its the site for my biopsy and its has to calm down, I've had various lumps and bumps over the last 2.5 months that have appeared then vanished, but now I have swollen glands in both sides of my groin, with the right hand side being the worst as I also have a hernia. I am currently on watch and wait and having spoken to a specialist we have decided not to do anything else as from what I understand theres a limited amount that can be done as a lot is non repeatable.
In the past I have had bowel cancer and fortunately I was on a trial where they used chemo pre-op, rather than after, with alarming results as I had cardiac arrests caused by the chemo drug Fluorocil 5, so in some respects I don't think chemo is available to me this time round. I'm starting to get used to how I feel day to day with most days being ok with the odd one chucked in where I am jst to tired to do much.
Anyway I look forward to reading what everyone else does to cope, Keep Fighting. 
Hello Paul,
Yes my nurse said the same, I got to I think it was 135 before I started to suffer a bit, got very hot and bp soared from about 128 to the 147 or so before they reduced then increased again, after that was fine all to the max dosage by which time my bp had dropped again.
I'm off for a walk after lunch as I hated yesterday my knees ached through lack of use. Did they put you on high dose of the prednisolone for days 2 to 5?
One other thing the steroids really muck up my sleep which isn't that great anyway, last night was 3 hours then cat naps for 2 more, if its the same tonight then tomorrow I'll have a sleeping pill, which I'm told are fine to take.
Oh and food lol I want to eat all the time, terrible I don't want to wind up being 20 stone 
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Good luck on Tuesday, I'm told its easier.
