Hi i have recently been diagnosed with Non Hodgkins Lymphoma and the consultant referred me for PET scan and CT scan to fins out if there is another area in my body they can do another biopsy as the original site is in my chest and the original biopsy was ok but there is a danger they could damage mu lung if they need to do another one there. if no other area they will need to do a bone marrow scan so that they can decide what treatment i need. i am really stressed as i wont get my results until 9th January now because of the holidays, dose anyone have any advice, they have told me it is slow growing so i am confused as i was hoping they would put me on wait and see first rather than talk about treatment.
High again Janie1234 , sorry to hear that things are dragging on.
A key worker often know as a Clinical Nurse Specialist (CNS) or some hospital used the Macmillan Nurse term can help a lot ….. but not all hospitals have them as it’s up to the Health Board to fund these posts. It took 14 years before I had an CNS.
I would call your clinic and ask who your CNS or even Macmillan Nurse is and see what they say.
