I've volunteered to take part in the REMoDL-A trial, went into the oncology department yesterday and signed up for it. It's standard R-CHOP with an extra drug (acalabrutinib) added in to possibly enhance the effects of the existing treatment. There was a detailed consent form, a few questionnaires on how things are right now before I start my first dose, then extra scans and blood tests, plus an ECG. I've got to go back in today to get a CT scan done, and they also want to take a bone marrow sample, all to be done before Monday, when it's Day One of the Chemo cycle.
It looks like I'll be having quite a few more hospital visits for extra checks, especially blood tests, for the REMoDAL-A trial, but once I get into the routine of things then it'll just become normal. I hummed and hawed about taking part, then I thought 'Why not? If nobody does trials then we'll never know if new treatments work or not' ....so I'm in.
Wish me luck :-)
Steve
Wishing you well on the treatment Steve. Yes someone has to blaze the trail for others, without this progress is not made.
I was in the same boat during my first Allo Stem Cell Transplant as the conditioning used did not have any chemo involved and although the graft failed within 6 months the lessons learned were put into good use. I have a rather rare skin NHL and had never meet or talked with anyone with the same condition until 3 years after my first failed SCT when I was at our local Maggie’s Centre Heamatology Support Group and the lad next to me had the same condition and was just a few months out from the exact same conditioning (with some little changes) and 4 years on he is still in remission.
Sorry to hear this, wishing you a quick recovery.
