Recently diagnosed at age 30

Hi  and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups. 

I don’t have DLBCL but I was diagnosed way back in 1999 with a rare, incurable but treatable type of NHL Stage 4a so although my Lymphoma ‘type’ is different I know this journey rather well.

I will say that given the choice between DLBCL and Lung Cancer I would 100% go for the Lymphoma. I am actually  living Asbestosis as well so I understand lung problems

R-CHOP is a very effective treatment and the aim is always to treat to cure. So let’s look for this to be the way this goes.

I can’t help with regards to head I just rocked out my clean head as it was one thing less to stress about.

The Bold links above are taken for the Lymphoma Action website. Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Lymphoma Online Support Groups for patients with a few groups specifically for Youch Parsons so you can actually ‘talk’ with others ...... I highly recommend these groups as there is nothing better than talking with others who have walked the journey.

They also have a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey. They also have a Lymphoma helpline on 0808 808 5555 where Sharon or Nic will be on hand to give you some support - open every week day from 10 till 3.

Always around to chat and help out.

Hi JLC

I also wanted to try and look as normal as possible throughout my treatment….it’s definitely achievable.

I experimented with wigs, and you don’t need to spend a fortune on them either as I found out.

They have some great ones on Amazon and SHEIN. It’s worth experimenting with.

Regards what to sleep in, you can purchase lightweight soft cotton turban type caps. Again, have a look on Amazon and SHEIN.

Good luck,

Sarah x

Hi JLC

My hair was falling out after the second Rchop, so I shaved it all off, it was going to fall out anyway and I was fed up watching it disappear in the shower. I was cold at night and wore a cotton turban at night, I also wore some neck buffs as a beanie, tge lighter weight ones were very useful.  My hospital also gave an allowance for a wig which was useful and covered the cost, so perhaps your nursing team can direct you?  I am a year down the line and feeling well, my hair has returned.   I rocked the pixie look for a while!

Hope you are better soon.

Irene

what stage are you on?

Thanks everyone. 

The hospital have been helpful with the wigs but they just seem to look really fake when there on me. I dont mind paying for one and im really not vein but Im loosing my confidence rapidly at the moment and i just want something to make me feel more like me. 

i will definitely have a look at Shein and Amazon. 

Any other suggestions for where to get good natural looking wigs would be appreciated

Can't really help you with the day. I just found a hat which suited me and got on with it. Just make sure to cover up while out in the sun. The treatment can effect your skin and make it easier to get burnt.

At night I would sleep with nothing on my head. I brought bandanas but I found them uncomfortable at night. I only wore them on really cold nights.

Good luck to you. I'm 31 and just finished all my treatment in March. It's been roughly 10-11 months from diagnosis to end of treatment. Got my hair back and my strength is slowly recovering. I feel pretty much normal most of the time.

If you need to chat let me know. Best of luck.