Round 4 R Chop on Thursday

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Hi it's Verity again,  going for my 4th R Chop, this time I am getting quite anxious as round three made me quite ill for over two weeks to be honest the worst I have ever felt. Round 1 and 2 although not pleasant was doable but round three really hit me.  Anyway this time I have also to have a picc line fitted as they find it hard to get a good vein in y arm, so again the unknown is making things a bit stressful.

I have pain in my back and shoulder which does not go away so I have just had a CT scan to check what is happening, so again worried that the treatment is not working

I am most of the time strong but feel as though I can say how I feel on here as I am sure people who are or have been in the same position understand.

Hope to hear from the kind people on this site

Verity25

  • Hi again 

    The PICC line will help a lot and will take away the need for cannula's to be put in and reduces that stress considerably. The thought of the PICC line going in can be stressful but honestly, apart from a small sting to numb my arm I felt nothing and much less stressful than having 2 nurses try 4 or 5 times to get a cannula's in.

    It is rather odd as some folks find the cycles get more challenging say at 2 to 3 then when they go for their next cycle it's not - makes no sense but lets look for it to be so.

    As to the back and shoulder pain....... I was the same and it was checked out and put down to the stress of the treatment and lack of activity and exercise.

    ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi Verity one of the unwanted gifts of lymphoma and treatment is you become much more aware of every ache and pain and things you may previously have shrugged off become a concern and you monitor it more acutely, so hopefully this is what you are experiencing. As for the scan try not to stress and see it as a review of how treatment is going. 

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • Hi Verity

    It's fairly normal to have a CT scan to check what is happening after cycle three. Waiting for results as always is stressful. In my case it showed the mass had reduced by 80% by that point. 

    I'm sure the current weather will not be helping, It's been unpleasant to get out of doors. I also  felt the cold and damp a lot while I was on treatment 

    Coping with the noise in your head is a big task and I can't think anyone who has gone through treatment has not been  anxious about it all from time to time

    On the positive side you are halfway through the chemo and some of the things that worried you pre treatment are hopefully no longer of concern.

  • Hi Mike,  your always there with knowledge, good solid advise and of course being positive.

    This community is a lifeline for all having a struggle, wobble whatever you want to call it.

    Thanks again,

    Verity

  • Hi Garfields,

    They was not going to do a scan till after all treatments, but because of the constant pain in my shoulder they have decided to,  so hopefully like you they will give me some good results.

    It is the noise is your head which you have to control and on occasions I do lose the battle for a short period have a little cry and then I am in control.  Think we all have to deal with this however we can.

    Best

    Verity

  • Hi John

    Yes I agree you do become aware of every ache and pain and I am sure we have all done it.  Hopefully the scan will show how well I am doing.  

    As I have said to one of people that have Kindly written to me, the support and help this community gives is brilliant.  I am sure like me people don't want to feel a burden and here you can get advise support and most of all know many have got through this and are well.

    Best

    Verity

  • Hi Verity

    Dealing with the noise gets easier as things progress but don't be surprised if it sneaks up on you from time to time. Odd things can cause it that can sometimes be total unrelated  to you illness or treatment.

    Normally I only get a bit when I am approaching review times I'm not sure that will ever go completely and I think it is normal for anyone that has had serious illness in their past. 

    Try and take care

  • Hi Garfields,

    I agree, thanks

    Best

    Verity