Hi Everyone,
My dad is in his first cycle of R-CHOP for DLBCL. He's had neutrapenic sepsis and spent 5 days in hospital. Following his discharge (still within cycle 1) he's experienced non neutrapenic fever. We were in A&E three times in 3 days over the weekend. The consultant has assured us it's definitely not sepsis related but the infection marker in his blood is slightly elevated. She sent us home with antibiotics and said to monitor it (even though it gets to 39c at times). She said it could be a slight infection or even the lymphoma causing it and that we don't need to go in again unless dad experiences more confusion or displays (more) worrying symptoms. Safe to say I'm feeling pretty neurotic.
His second cycle was due today but has been pushed back to Thursday.
Does anyone have any experience of this?!
Thanks
Hil
Hi Hil, so sorry your dad has had a bumpy start to his treatment and issues like these can well be part of the journey, just keep monitoring and if he is speaking rubbish and a high temperature phone his team, the chemo line that you should have a number for or 111 for advice.
I had sepsis on a number of occasions and a good few infections that we could not find the answer for.
Lets look for antibiotics to do the job....... and it’s not a problem that his next treatment has been put back for a few days.
((hugs))
Thanks for the reassurance and wise words Mike.
Were there any tell tell signs between it being an infection and sepsis? I thinking that if his cycle two is on Thursday and the fever caused by the lymphoma continues then we'll be going to hospital twice a day to check it's not sepsis. The consultant assured us he wouldn't get sepsis between now and cycle 2 as his neutrapenic levels are better but after Thursday we won't know?
Hugs.
Hil
Hi again Hil, we could never know the difference, high temperatures over 40 and shaking like a jelly, head to toe was my normal sign something was going on and I could be fine one minute then the next - bang.
But we have got used to it so actually have a hospital gab bag made up with everything that I would need for a few nights in hospital.
((hugs))
Yes and I guess you just can't be too careful. I like the bag idea and will get the same made up!
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